HealingWell
Search Close Search
☰

New here

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/1/2020 3:13 PM (GMT 0)
My name is Nikki. I found out I had crohn's five years after thinking for 25 years it was something else. I want to know how every is and how are you handling this virus with this chronic disease?
Posted 4/1/2020 5:04 PM (GMT 0)
Hi Nikki, welcome to Healing Well. Sorry to read that it took so long to get a diagnosis. What medications are you on to treat? Are you currently in a flare or what? A good site to learn about this disease & different medications used to treat is CCFA.org.

We are all following the guidelines to avoid exposure as much as possible. Staying away from people except to go to the store, medical appts & so forth. Keeping down community spread is vital.

I limit myself to my local news in the evening to keep track of what is going on in my city & state. I do not read about it on the internet news, nothing like that. Staying glued to the tv or internet will just cause stress that I do not need. I find ways to distract myself.

Take care.
Posted 4/1/2020 11:44 PM (GMT 0)
Hi Nikki, and welcome to HW,

Taking so long to get a confirmed diagnosis isn't unusual, but 25 years would be the upper limit of course. Hope you're getting good care and your treatment plan is working for you

As for the virus, whether you have IBD or not, many are having anxiety or even flat out panic over the chance on being exposed or contracting this terrible plague. You really have to try to keep yourself calm. Follow the advice laid out, particularly the social distancing part. Hopefully things start to improve soon, but we might see things get worse before better unfortunately.
Posted 4/2/2020 1:12 PM (GMT 0)

straydog said...
Hi Nikki, welcome to Healing Well. Sorry to read that it took so long to get a diagnosis. What medications are you on to treat? Are you currently in a flare or what? A good site to learn about this disease & different medications used to treat is CCFA.org.

We are all following the guidelines to avoid exposure as much as possible. Staying away from people except to go to the store, medical appts & so forth. Keeping down community spread is vital.

I limit myself to my local news in the evening to keep track of what is going on in my city & state. I do not read about it on the internet news, nothing like that. Staying glued to the tv or internet will just cause stress that I do not need. I find ways to distract myself.

Take care.


Thanks for responding. I am on humira the new version that don't sting. They treated me for 20 years for UC ad since science has come so far from that time,;they made an accurate diagnosis and right now I am in admission. I am locked in my room now. It is hard for anyone to bring me food and I have a 14 year old to feed,but he has to also be isolated.So I am scared and hungry at a sad time for me. He goes in the kitchen and find something to eat.I guess people do not want to get the virus if I have it.Thanks for the welcome.
Posted 4/2/2020 4:11 PM (GMT 0)
Wow, that is a long time! We've seen members get their dx changed before, just not 20 years later. Excellent news that you are in remission. I saw in another thread that you were tested for the virus, do you have the results back yet?

Take good care of yourself, the isolation is tough one.
Posted 4/8/2020 2:13 AM (GMT 0)
Im watching too much tv, I seem to be addicted to needing to know the news in every single country. I feel better when I walk or run or try to keep a routine.
Posted 4/13/2020 3:49 PM (GMT 0)
My news news is that I have been healed completely of Cov19,but have bronchitos instead.I let God do all the work before my prayers even started. It was His grace that delivered me.I have so many emotions,it seems with all the isolation close to four weeks kill the virus,all I know is I no longer have it and have recovered.
Posted 4/13/2020 3:51 PM (GMT 0)

straydog said...
Wow, that is a long time! We've seen members get their dx changed before, just not 20 years later. Excellent news that you are in remission. I saw in another thread that you were tested for the virus, do you have the results back yet?

Take good care of yourself, the isolation is tough one.


I was tested and was positive but now recovered.
Posted 4/13/2020 10:22 PM (GMT 0)
Great news Nikki!!!

And Thanks God indeed!!!!
✚ New Topic ✚ Reply