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Humira not working - advice please?

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Crohn's Disease
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Posted 11/19/2021 10:26 PM (GMT 0)
Hi - i have been on humira for 2 years - i have had no side effects on it but quite quickly had to up the dose to weekly. I dont think it’s ever worked for me really. Just had an intestine scan which shows no improvement and my calprotectin score is around 800. My consultant is considering stelara for me. Any thoughts on this? Also thoughts on diet too please? Thankyou
Posted 11/20/2021 1:28 AM (GMT 0)
I'm sorry that Humira hasn't worked out for you. The good news is there are so many other choices out there. Stelara has been getting extremely good reviews, and seems to be the only anti-TNF that is rivaling Remicade for effectiveness. I'm really surprised that Remicade isn't being offered to you first, and I might assume that you've already been on it.

As for diet, you'll get a lot of differing views on that. Some feel diet is very effective in managing symptoms, and others feel that other than the typical avoidance foods, a healthy subjective approach is good enough. A lot of trial and error unfortunately. If you're having symptoms, you might try going with a low residue diet for several days or until things calm down though.
Posted 11/20/2021 7:20 AM (GMT 0)
Thanks for your reply. I think my consultant is keen to offer a drug that doesnt involve having to go into hospital for infusions apart from the first treatment. Then it is self injection every 8 weeks.
Posted 11/20/2021 5:30 PM (GMT 0)
Franny19, I wouldn't hesitate for a moment moving Stelara for the reasons 73monte gave.

Your insurance dictates what they will pay for, infusion medications costs are higher since it's either done at a hospital or an infusion center.
Posted 11/21/2021 12:25 AM (GMT 0)
After developing a reaction to Remicade and a brief stint on Cimzia, I was on Humira for a few years -- increasing my dose like you gradually (was up to two syringes a week). My GI doc checked my levels to confirm they were in therapeutic range (they were) but since I was developing more symptoms opted to switch me to Stelara. Been on it now for 4+ years (I'm every 4 weeks) and it has kept things in check (which, for me, is not forming new fistulas). They also combined int with Azathioprine but hoping to taper that dosage down after I've recovered from surgery and we think things are stable.

Best of luck!
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