Is it really Crohn’s?

Hi there,
I guess I’m really confused. I have had GI symptoms my whole life, but I’m also autistic and have PTSD….so GI stuff is kind of common. Things have definitely gotten worse slowly the last 20 years- blood when using the bathroom in stools and just inflammation, food allergies, struggling to digest food. It reached an extreme state in 2021- itchy hives erupting all the time, positive ANA, higher CRP, horrible joint pain, fatigue, huge GI stuff. And this was with being on a detox lifestyle for years. How could there be this much inflammation? Other antibody tests negative. I do have an acute Lyme and chronic Lyme infection. And started a histamine intolerant diet helped a lot. But in the colonoscopy found inflammation and stool sample showed blood. 3 doctors all say Crohn’s. Really? I don’t have diarrhea with the histamine intolerant diet. I struggle now with acid reflux. Could this all be something else? I’m terrified of taking Budesonide- considering mental and emotional health. Thoughts?

Hi there,
Thanks so much for your response. My diagnostics were done a few weeks ago, they took multiple biopsies during the colonoscopy- this is what told them I have Crohn’s. I guess. The hives are from my inability to deal with histamine anymore, MCAS, lack of DAO enzyme, my system is no longer able to digest food well- I can’t handle histamine, oxalates, or salicylates. They wanted me to start Budesonide immediately and have been linked with the IBD specialist at our local large hospital.

Thank you. Blessings in love
I just still struggle with why I have Crohn’s or this just can’t be correct. Have I caused this somehow? I have always thought of this disease in white males, especially those of Jewish descent. I am an older female.

Brit Confused, when I joined Healing Well in 2004, it was because of this forum. I too am a female & I don't know where you read about it mainly being a male disease, that simply is not true. There is a lot of bad information on the internet. If I am looking up something on the internet about a medical condition, I read at the big hospitals websites, this is where you will get accurate information. The ccfa.org is another excellent website.

You did nothing to cause crohns so please stop beating yourself up over that one. Biopsies are what determines & gives the diagnosis of crohns. Right now you are in denial, some of us were too in the beginning. Just don't let yourself stay in denial too long. Educate yourself about the disease & the various medications used to treat.

Make a list of questions for your IBD specialist.

Welcome to the forum.