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Pentasa enema for rectal narrowing

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Crohn's Disease
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Posted 4/24/2022 3:52 PM (GMT 0)
Since last November I have had rectal problems including rectal pain and soiling. I underwent an MRI dynamic which did not show any fistula. Rectal pain has been persistent ever since. My GI literally tried every possible rectal med out there. I saw him yesterday complaining of this severe rectal spasm and severe abdominal cramps that would last for 15 minutes after a bm to the extent that I would fear having a bm though I have diarrhea all the time. I reminded him of the rectal narrowing I had before and he refused then to do any kind of dilation. He recommended adding Pentasa (mesalamine) enema 4g to be used interchangeably with Trud enema and to take Imuran again.
Does anyone have a similar experience? Today, is the first day for taking Pentasa enema 4g and I feel very much exhausted. In the past, I used to take 1-2 gms but this 4g enema causes fatigue. Is this normal?
Posted 4/24/2022 9:47 PM (GMT 0)
Minnie,

So sorry that you're still battling this problem. I was wondering if the problem isn't more colon related. Like a spastic colon, which they now refer to as IBS. Sounds strange that someone with IBD would have IBS, but it might be worth checking into.

I know that you've tried several meds, but there are a couple of meds that are used for IBS to relax the colon. Maybe worth a try?

If all this fails, it might be time for another opinion. Any chance of a referral to someone else?
Posted 4/24/2022 11:43 PM (GMT 0)
No unfortunately it doesn’t seem to be IBS related. It has to do with my rectum and my anal sphincter. My GI suggested having biofeedback treatment but I refused. So, he recommended mesalamine enema to be taken interchangeably with Trud enema. Out of my readings, it turned out that Pentasa enema needs at least 2 months to put things under control. I know that my GI always refuses the idea of dilation and tries to make use of all meds before opting for a surgical procedure.
Posted 5/1/2022 7:27 PM (GMT 0)
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Posted 5/4/2022 8:51 PM (GMT 0)
U B Tough, could you please elaborate more on these turmeric suppositories
Posted 6/22/2022 12:11 PM (GMT 0)
I have a rectal stricture no pain, just issues passing stool. I've been taking lactulose & scheduled for rectal dilation in July 2022. It's been very frustrating. I have no pain just issues passing stool & my MRI from 2020 & 2022 show rectal stricture no change. I've had Crohn's for 34 years now. I've had 4 resections, the last one being in 2013. Taking stelara overall doing well, but these bowel movements are frustrating. Going little bit, not emptying my rectum.
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