Randy,
Of course I've had a few. I didn't name them, although I've called them some pretty bad names.
I've got two that will not heal or go away completely. One on my abdomen and a RVF. They both are squirters.... I wish mine only squirted 4 or 5 feet. When they decide to squirt they'd knock a Texas buzzard off a fence post at 259 feet...lol... Ok. Not that far but they do squirt a bunch and it can go across a room to the other side.... BUT the one coming out of the skin in my abdomen will close up. The little red mound will go away and then suddenly the little volcano will come back and it then splits
open and spews...then it goes away again... Darndest thing I've ever felt or seen. My CRS said it looks like a clean cut every time it
opens on its own. A straight thin line... But that one happens occasionally and surprises us almost every time. My numbers don't increase, I don't feel significantly worse....but suddenly there's this large zit like thing in the same spot that
opens up and spews colon mucus.... They can't find where it comes from but they think it's from the disconnected Hartman's pouch all the way up to my abdomen. The RVF is also from my disconnected portion of the sigmoid/rectum left over forming the Hartman's Pouch.. we can see that one but it doesn't show up on my CT...It is huge and leaks alot.... It also squirts. I also have this pocket that makes a mound but doesn't break thru on it own.... So very painful. I have started draining it at home and by the next week it's gone.... That one is supposedly caused by a clogged pore.... So it doesn't count--but the darn thing hurts as much as my fistulas! All my fistulas developed before I had surgery. After surgery no new ones. They already tried to remove the Hartman's pouch which would get rid of those two fistulas.... but we had to do a modified APR....I developed issues during surgery so they got what they could and got out ASAP.... So no cure.
My GI once told me that he'd never seen a fistula squirt .. slow drain yes.... But never squirt. So he removed the pressure wrapping I had on the abdomen fistula and it shot out like a fire hose. He cussed like a sailor, I laughed like a loon and his employees spent the afternoon disinfecting that room.
The fistulas scare the daylights out of me too. I don't like the mucus or the smell.... It's totally different from regular mucus or the smell of body fluids. Yuck!
So you are not alone.......
Clo
Post Edited (clo2014) : 2/10/2024 8:27:36 PM (GMT-8)