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Crohn's Disease
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Posted 10/9/2007 9:48 PM (GMT 0)
I have posted over in the IBS board, and today I wandered onto here to ask questions. I've been nauseated sometimes minorly, but mostly severely for the past half year almost, every day. Sometimes I do have bowel pain, but it's more like cramps. I don't have any issues with my bowel movements though, no increase or decrease in frequency, no blood, nothing abnormal, except maybe sometimes loose stool.

My fiance told me to go ahead and post here about it. His ex-girlfriend had Crohn's, and her symptoms reminded me of my own. She had to get surgeries and such to fix this problem. At the moment, I'm just wondering if I should put down the money for a colonoscopy. I'm also wondering if my fiance just didn't know the whole story about her. Can people have Crohn's without the serious bowel problems? I never thought they could, but he was adamant about her symptoms. I may be making myself questioning obvious things. I was also told though by a GI to get a colonoscopy to rule out Crohn's, but they never said they thought it was Crohn's, even when I asked.

Frankly I'm getting a bit tired of all this diagnostic stuff. My nausea could be from IBS [but it would cancel out, nausea isn't a recognizable symptom to most doctors], my nausea could be from my Fibromylagia [which is being poorly treated], or it could be Crohn's. I'm sorry if my questions are ill-informed, I would just like to know where to head from here.
Posted 10/9/2007 10:00 PM (GMT 0)
You pretty much need a colonoscopy and all the other usual tests to rule out IBD...many IBDers will never experiance many of the IBD symptoms, but it's still IBD, there are varying degrees of severity from mild, moderate to severe.

With IBS there is never inflammation, or blood unless it's caused by a hemherroid.

:)
Posted 10/9/2007 10:00 PM (GMT 0)
Hi sweety, sorry to hear you're having problems. Have you been diagnosed with crohn's yet, or is it something you might think you have?
As far as fibromyalgia causing you to feel nauseated, I'm not so sure. I've had fibro now for a few years, and have never been nauseated
because of that. It really only causes bad unrelenting pain in your muscles & sometimes joints, it also makes you very fatigued, but these
can all be symptoms of crohns also, so sometimes it's difficult to know which of the conditions are flaring.
If you doctor is wanting to do a colonoscopy, it would be one way to find out just what might be going on. It might be the way to head...
Posted 10/9/2007 10:14 PM (GMT 0)
I'm haven't been diagnosed with Crohn's, but I've had a curiousity if that could be it from what my fiance has told me and also my GI doctor saying I should probably get a colonoscopy. While I won't get one at that GI clinic [I found them to be completely lacking in their abilities as Doctors], I am planning to go to UVA hospital, since it's nearby my hometown.

I was always worried that my Fibromyalgia was covering something up, but I have had it for years up to now, without diagnosis. It was only diagnosed after I started seeing multiple doctors due to my nausea. They were never including it as a symptom. They just put me on anti-nausea meds as treatment.

I'm guessing the majority would say I need a colonoscopy, so all I needed was a little push like this. Thanks so much. Anyone else feel free to post more, I'd like to read other input.
Posted 10/10/2007 12:09 AM (GMT 0)
Hey. Im 21 and I got diagnosed with Crohns back in March. At first when I went to the hospital they said they ruled out crohns, but after the colonoscopy and stomach scope they found different. My GI said they don't know when I got it, but they think I might have had it since I was little. I didn't really have any symptoms, I was just constipated all the time. If you have been feeling sick for as long as you have now something is probably wrong. You should go get the tests done its better to be safe than sorry. If it is crohns you need to get it under control before it gets any worse. Hope you feel better, keep us posted!
Posted 10/10/2007 12:52 AM (GMT 0)
Thanks a lot for your story. I had many preconceptions about Crohn's that made me think it couldn't possibly be me. I will definitely get the tests done now. It sounds like the best option for me.

Thank you so much
Posted 10/10/2007 1:45 AM (GMT 0)
just a concern but think about a small bowel follow thru and a pill camera
Posted 10/10/2007 1:57 AM (GMT 0)
The pill cam endoscopy? That's what I think I read about. I thought that would be good to do after the colonoscopy, whether something turns up or not. At this point of being ill, I am ruling out everything I can. If this comes of nothing, I'll probably get a full Celiac panel [I only got one test last time, heard I needed three though]. I doubt it's Celiac almost definitely, but I need more confirmation.
Posted 10/10/2007 4:02 AM (GMT 0)
You mentioned nausea- the gi NP I spoke to recently told me they had just diagnosed a young man who had been treated for nausea- his only symptom- for 5 years. The gi did a colonoscopy and it was very obvious it was crohn's. She said he had no other complaints other than this nausea.
Posted 10/10/2007 4:23 AM (GMT 0)
Wow, thanks for that. I feel horrible for once again getting my hopes up that I could finally figure this out. They said IBS, but no IBS treatment is working. In fact, it feels like it's irritating it. It seems like a lot of things fit with Crohn's. It's gotten to a point where I hope it is, and it's such a horrible thing to hope for. I just want to be treated, and I am desperate.
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