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Posted 10/21/2007 7:12 PM (GMT 0)
Hi I know it's been a while but I'm back....  And when I say back I mean yeah pretty much in a flare.  I was being weened off the Entocort and that just didn't work all the symptom starting coming back.  I ended up in the hospital for 4 days for dehydration and pain control and my K was critically low (that was in august).  Of course, my GI tells me my blood work looks "normal" and I just shouldn't be having these "symptoms".  WHAT?? Ok I can't help I've having these symptoms, I didn't ask for them.  And also I have developed these "KILLER" headches.  My PCP says they are Migranges.  WHY?  anyone else "develope" migranes as a result of an IBD?

I hope someone can offer some insight into my mystery.  A flare with Normal blood work ? Migranges?  I'm just not sure I can do this again.....

Posted 10/21/2007 8:41 PM (GMT 0)
Hi I think I read somewhere low potassium can give you headaches hope I got that right. Jump in others if I didn't. Hope it isn't migraines I don't have them. Not sure what's going on with your blood work .I know weaning off the pred. can give not so good sideeffects and a person has to go back on them. How does the Entrocort work on your intestines and does it give you the heartburn? Thanks for the help, We get threw these upsets somehow I was upset Wed. when I had to go off the Imuran and Rem. but I have managed to get threw all this and went on the pred. You"ll calm down after you work things out. Best Wishes lol gail
Posted 10/21/2007 10:07 PM (GMT 0)
Gachrons,

Entocort works on a specific part of your intestines. It is steriod like. I was on it for just a little while.

Irish,

I suffer from terrible migraines. They started when I was in a flare. They did blood work, and didn't mention anything about my potassium levels. I have two different kinds of migraines, ones that make me sick at my stomach, sensitive to light, etc... The other kind, I lose my peripheral vision, it last about 20 to 30 minutes, and then I have a dull headache for the next three days. They have gotten better since I'm in remission. I still get them, but not as frequent. Best thing to do, lay down and put a cool wash rag on your head. I used to keep a wash rag in the freezer just in case. Hope this helps.
Posted 10/21/2007 11:16 PM (GMT 0)
I was dx with migraines 6 months before I was dx with CD. Though my headaches are triggered by things other than CD (hormones, weather changes, etc.), I have noticed a correlation (if not cause) with my CD symptoms (even when blood work is "normal"). I will get multiple migraines over a short period of time just before my GI symptoms worsen. During a flare, I have 3 or 2 or 3 migraine attacks a week. I use Imitrex which works really well for me. 50mg-100mg will get rid of the headache if I can catch it before gets full blown. Also, rest in a dark, quiet place will help a ton when I can get it.

Keeping a headache diary really helps to identify patterns and triggers. Also, if they keep happening or get worse check with your GI or see a neruorologist for a 2nd opinion.

Good luck.
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