Misdiagnosed :(

I was diagnosed with ulcerative colitis about 2 years ago, and just found out that I was misdiagnosed and actually have crohn's. I know that they're pretty similar, but it feels weird to suddenly switch. I've tried a lot of other meds, none of which worked well long-term, so I think I'll be going on remicade soon. Any advice about remicade or crohn's?

Welcome Rachael,

We are glade that you found us but sorry you have to be here under these conditions.We will be glade to help you in any way we can.Remicade is a wounderful drug and it has helped alot of people that has not responded to other meds,so good luck and please let us know how it goes and please do continue to post.

Hi Rachael Wecome to Hw we are glad you have joined us and yes it must `seem a little weird to get rediagnosed with Crohn's .I had IBS for years and now Crohn's .I was on Remicade for 6 months and it helped heal my fistula. So I am hoping you do good on it. I learned alot here and have found this to be a great place ,we care about each other and help each other. I also found low roughage diet helps me. I have been following that since Jan. when I was DX. THe Rem. was not too hard to get done and I did not have problems getting it done. It was stopped because I wasn't completely doing good on it. Some do very good. Best Wishes .lol gail

This was my experience with my IBD too, first Uc, then CD. Many here have tread that same path. Its all too familiar..

Matthew

Thanks to everyone who replied, i know it's been a while, but life has a way of keeping you busy at inopportune times! I'm still not yet on remicade, my gi wanted to try a combination of entocort and a few other things first... it feels like it's about to stop working, if you know what I mean, so I'm predicting that I'll be starting soon. I'm tired of trying new meds, i just want something that works!! (haha, sorry for the slight rant...) anyway, thanks again for replying! it was tons of help!

Hey Rachael :)

I have crohns-colitis as well (cd affecting the colon) and basically the same meds used to treat UC are also used to treat crohns-colitis...one other difference between having UC and CD is that with CD the patterns of inflammation are skipped with healthy tissue in between, with UC the entire area will be inflammed and as mentioned above, with crohns the inflammation can penetrate the many layers of the intestinal lining which can lead to fistulas which are not found with UC because of UC only affecting the mucosal lining of the intestines.

I suggest a good probiotic if you're not on one already...the one I use is called primadophilus reuteri made by natures way, it's affordable and only one/day is needed and most importantly, it has guaranteed intestinal release...it also aids with lactose intolerance, high cholesterol and vaginal health as well...must be kept cold at all times though...found in the refridgerator section of health food stores.

:)