my hair!!!!!my weight!!!!!!!

omg I can't take this anymore, I had surgery in March, had my terminal ileam worked out, I've been ok with pain, but the diarrh. is still prominent, and all of the other sypmtoms too. Arthirits in knees and ankles...but my biggest problem is that I'm gaining at least 6lbs a month since.....reallly! it won't stop, I'm down to 15mg of pred and taking my asacol daily. My hair is falling out in clumps and i can't get it to turn around. It seems like I've traded one or two things for another like being fat and balled, when I'm usually or b4 I was diagnosed crohns, 130-140 lbs, 115-123 when trying to get a diag, and now I'm 170....I'm so depressed this is the worst trade off. I've bought like 2 or 3 sets of clothing cause my weight is constantly changing,  I have constant acne my life so sucks at this point, it's been a total 360. I work out and still don't loose any wieght, I cut down my eating and gain weight....***.....I don't know how to handle this, i have a fat phobia, I look at myself every day like,  ugh! Am i the only one going through constant changes, and how do I deal withthem any suggestions??????

Hey There, sorry to hear you're going through this. Well i had surgery to have my terminal ileum removed as that was where the disease was at it's worst. After surgery, i was put on Questran and nothing else. At first i was really disappointed as i still had cramps and D but after a couple of weeks the Questran stopped all the pain and the D was almost completely under control. It had no side affects, i put on a little weight which made me look like a human as opposed to a skeleton and my hair and skin are fine too. Maybe you haven't had the terminal ileum removed but i just thought i'd share that with you in case it may be of any benefit. Although that was 8 yrs ago, and unfortunately i can now feel the symptoms of crohns coming back to haunt me slowly but surely. But i kind of refuse to let this disease get a hold of me and most of the time i try to convince myself i have nothing wrong with me. I'm not saying this is a good idea and for most people it cannot be ignored, but i just think the power of the mind is very important when you have an illness and if you make yourself believe you are going to get better then it may have a positive affect on your recovery.
I hope you find a solution soon......

One other quick thing. The first time on pred I have bad acne also. This time I have not. I am on the pred for Pyoderma Gangrenosa, a skin condition on my leg. I had to see a dermatologist for this. We reviewed my use of soap/lotions. I previousely used Dove face soap. He had me change to Oil of Olay bar soap and Oil of Olay complete moisturizer 2x a day. My skin has never looked or felt better acutually. Might be worth a shot to try those two and see if it helps at all.. just a thought.

Hi I am going threw the fat and fatter thing now myself and although I try to stay off a lot of sugar the weight gain is feeling like too much .I am doing more cleaning now and trying to keep busier now Xmas season is upon us it does help with keeping busier. I had to get a new coat this year as my old one is too small but I must say it is a nice coat. I am hoping to at least stop gaining, that at least would be a start. Don't have the hair lost issue now but did for awhile it is growing back and finally thicker. I like others just remind myself that it is a part of getting better and hopefully won't last .How much longer will you be on the pred.? I don't know how long for me right now. I guess it is something we try to deal with while we have to at least we are not so thin as to be in need of having to put weight on I was very sick when I started to gain so I try to remember which is worse for me .We"ll get threw this in time . Might be the Asacol doing the hair thing to you or the combination .Hang in here with us we"ll get this licked in time. lol gail