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I talked to Abbot Pharm/Humira/Night Sweats

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Crohn's Disease
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Posted 1/18/2008 3:04 PM (GMT 0)
This sure is a bummer!  I called the 800 # to ask about night sweats and humira.  The suggestion was to talk to my GI....like that's going to help me any!  Don't get me wrong, my GI doc is wonderful, but I'm his first patient to take Humira, which means he's not as familiar with it as he is w/Remicade.  They did tell me that in the clinical trials, there were people that had night sweats, but it was not bad enough to further investigate so is considered a rare side affect.  I didn't have these until I started taking Humira.  They were worse when I started the maintenance dose. After a week, I would have severe night sweats until I took my next dose.  My doc and I decided to increase to weekly injections.  This helped tremendously, especially my crohn's.  I'm still doing weekly injections, but I do have some night sweats, with no rhyme or reason as to when they happen and how bad they are going to be.

Any ideas?

Posted 1/18/2008 4:14 PM (GMT 0)
Hey Rob,I would first like to ask how did the children support group meeting go?I wanted to come but I had a doctor's appointment and by the time I got back in town I was to tired and not feeling well,this is the reason I was a no show.I took one of the posters in with me when I seen my GI and showed him and he put it up in the waiting room and was glade to get it.I talked to a few people that wanted more info on the adult support group.Rob if you could get me some more flyers I will put these up as well and I do believe that we will be able to get some from that area to come.Oh and how is Mark doing??????

I deal with this very issue as well,so I know were you are coming from,When I was first put on Humira it was for my RA not my Crohns but it has helped a great deal with that as well.This is what I was told by my Rheumy-that in clinical trials that there were reports of people that were takeing Humira every other week at 40mg complained of night sweat's but with in an hour after taking the shot the sweat's went away.I have talked to my Rhuemy and my GI about this and I was told that as long as the medicine is working and poses no seriouse threats not to worry about it.I wished I could tell you more but most people that I have talked to complain about this and severe fatique.Rob if you want to talk more please e-mail me any time.
Posted 1/18/2008 7:17 PM (GMT 0)

Curley,

Are you on any other meds that may be the culprit for the night sweats?

Posted 1/18/2008 7:27 PM (GMT 0)
Kitt,

My medications have not changed except for Humira.

Curley,

The Pediatric Support Group meeting was a success and will just get better.  Mark is feeling better.  He and Stan came to the meeting to show their support.  Don't worry about not being there.  I do understand about not feeling well.  I have already talked to Michelle to get more posters made for us.

I guess the night sweat problem wouldn't be so bad if I didn't have to work the next day.  As we all know, those sleep interruptions do not help when we are already feeling bad.

 

Posted 1/19/2008 10:56 AM (GMT 0)
hey robwise, dont forget that night sweats are a common symptom with crohn's disease as well, it could just be a coincidence that they started up at the same time. mine always went in a cycle.
Posted 1/19/2008 5:30 PM (GMT 0)
i had no night sweats until i started entocort and remicade. they both were started at the same time, so i cant say 1 med for sure. rare side effect? yet i know of many people on here that get the sweats for undisclosed reasons. i smell bs.

 

Posted 1/19/2008 5:42 PM (GMT 0)
Rob, I have periodically suffered night sweats for many years. Before Dx with CD, I was tested for TB a bunch of times since that is a major cause for them. Each test was negative though.

After Dx and starting meds, I was sweat free, so to speak for a while and then they came back. I've used Enbrel and now Humira and still can't find much rhyme or reason to them sweats. They come when they want and are much worse in the warm weather, when my body temp gets higher. I've found that if I run the a/c at SUPERSONIC, I can get through the night, most times.

It may well be that you are experiencing the sweats as the benefits of the Humira wears off and that switching to weekly injections may stop that. Night sweats have been well documented as a symptom of active Crohn's Disease, whethr a person is being medicated or not and sweats are definitely caused and/or made worse by steroids such as Pred and/or Entocort. Sure, Entocort is supposed to have fewer side effects than pred, but it is still a steroid and fewer does not mean none.

I hope that the change in frequency reduces your sweats so that you can be more comfortable.

Posted 1/19/2008 11:12 PM (GMT 0)
Are you having daytime fevers? I have a fever for part of most days when not on Pred and then the fever breaks at night resulting in night sweats. I don't know if you can tolerate tylenol but one taken before bed ususally eliminates the night sweats for me. (I don't take it every night just when I might need it)
Posted 1/19/2008 11:28 PM (GMT 0)
So lets guess what Abbott said. "It must be the CD". Humira could never cause night sweats... Of course it can, just like all those drugs. We are ingesting poisons to try to control our own toxic illnesses.
I must be getting a tad irritable on the prednisone again, but if you ask the guy who invented prednisone, guess where he is?
Posted 1/20/2008 2:22 AM (GMT 0)
Ok, Robwise, I hope you didn't take what I said personally. Please know that I am just very angry with the pharmaceutical and FDA buisnesses. They are not out to protect us, just their patents and their pocketbooks. I think that if we ever get a type of Universalized healthcare here we will have much greater access to safer and better drugs. It is so political.
I hope you report this reaction to the governmental source and make it public. Your doctor is required to report it as well by the way.
Take care
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