Is my remicade not working anymore?

I have been on Cade for about 7 1/2 years. We just doubled my dose because it was not working as well as it should. My doc explained that yes it does stop working and I will have to adjust the dose and when this dose stops working we will look for other meds to try. I am happy he was up front with me about it. Good luck and make sure you tell your doc about this.

It stopped working for me after 2.5 years. I stupidly ignored the symptoms, and my GI blew me off and just prescribed prednisone when I was icky, until I ended up in the hospital. Found a new GI who said 'you have built antibodies to the Remicade and it's not worth taking anymore'

I am now on Humira. It's been great as well, no reaction or issues.

i was on remicade for a while. it was gradually getting weaker and weaker, so i switched to humira. at first, i didnt think i could do the self injection... but its really not that bad. the needle itself doesnt hurt (and really, with crohns you HAVE to get used to needles). its creepy to push it in though, so i just rest the needle on my skin, close my eyes, and push it in. feels weird, but its not that bad. its not easy at first, but i think you could get used to it.

also, my pediatrics doctor mentioned something about a study about lymphoma and remicade. if i remember right, she said that this study found that your odds of getting it went up by a significant amount (though they still remained low) if you were on remicade and 6mp. i could be wrong though, because this was a while ago now and i was more interested in eating pretzels at the time.

i miss being in pediatrics, they gave me pop and pretzels and had TVs and gamecubes to keep me occupied during the infusion. good times.