Right Diagnosis

This will probably be long and i will try to make it as short as possible. Any help would be great.
In May 2007 I developed a pain in the lower right abdomen. It never went away even if i felt fine, if that part of my abdomen is pressed upon it hurts. I let it go for a while and then had a point where i did not even want to get out of bed and had a mild fever. At first my G-ma who was an RN at the time but has since retired said to go to the doctor as it could be appendicitis. Well I did not go, as it was fine the next day just still hurt to touch. I also developed gas, and i would always have it whenever i ate, almost no matter what it was. I thought i narrowed it down to becoming lactose intolerant and stopped all dairy, and it seemed to work for a while but i still had the pain in my abdomen only to touch though. Around November i had another incident where it just felt like my abdomen swelled up and it just felt like i wanted to have a bowel movement or pas gas. And anytime this happened it would make my stomach/abdomen feel a little bit better. So finally i went to see a GI, gave him my symptoms, and he started me with the tests. Upper endoscopy, xrays, ct scan w/barium, colonoscopy. It was not until the colonoscopy that he said it looked like i had chrons disease or ulcerative colitis. He started me on pentasa, and i was taking that for a while and it felt like it made my stomach worse it made me constipated when i was never constipated before or had diarrhea. I went back after a month and explained to him that it wasn't working at all, so he wanted to put me on cipro and flagyl for 10 days to make sure i did not have a real infection and those had no effects either. So now i go back on the 26th and im pretty sure he wants to start me on 6-mp purenithal and im sorta nervouse about it with the immune problems it can cause. He really wants to shy away from using prednisone which i really dont blame him as i dont want to take it either based on what i have heard. The problem that i have is it seems my symptoms don't seem to match up with chrons. I wonder if i am just in remission. Because i dont know what remission would feel like. When you guys are in remission what are your symptoms? Are there any? Do i might not even have chrons and maybe just bad ibs? Curious as to i havent seen anyone with gas problems and thats my main problem. Any help would be great. Thank you so much.

Your symptoms are very mild, like those of my daughter, who was misdiagnosed because they were so mild. It hurt only when she pressed hard on the RLQ. She had loud abdominal sounds, too. But she felt fine.

The inflammation can eventually cause damage, like a stricture, so even though it doesn't bother you much, you need to stop the inflammation. If you still have pain when you press on the right lower quadrant, you probably are not in remission.

A blood test can check CRP and sed rate, which can show inflammation levels.

Entocort might work for you...it has worked for my daughter, and kept her in remission for nearly two years, so far.

Post Edited (njmom) : 2/21/2008 10:36:56 PM (GMT-7)

The weird thing is that i too have loud sounds coming from the lower right area, and it is always followed by a sharp pain but only like 2 seconds tops. Also, it worses at night and causes me to sometimes lose sleep because the pain increases as i sleep. I have a theory that i could be my bladder filling up and causing an increase of pressure but still hurts after urinating. Throughout the day after i wake up and eat it generally feels a lot better especially after passing gas or having a bowel movement. It seems to really help when i play softball it feels fine and i almsot feel no pain while doing activities the problem is that when it hurts i do not even want to do anything!!!

Also is gas commonly associated with chrons and UC? thanks for all the responses. Im glad i found this forum.