Will I ever get better?

I'm so tired, I don't even know what to do with myself. It's been 7 years since I was diagnosed and I have never been into remission. Every day for the past 7 yrs I've gone no less than 10 times a day. I've been battling a tag and fissure as well. SOOOO painful. I was wondering if anyone has as many food sensitvities as I do. Here's a general list sorry if it seems to long.

Broccoli    Cauliflower   Aparagus    Watermelon    Bell Peppers    Lettuce    Green onions    Bananas    Pineapple    Oranges    Grapes     Blueberries   Plums         Onions           Carrots          Celery      Cucumber        Tomatoes  Apples        Strawberries

Coconut   Raspberries  Peas          Corn              Green Beans    Pasta       Sauces           Peanut Butter             Jams

Chocolate Coffee        Beans         Ketchup         Mayo             Mustard    Relish             Hot dogs   Hamburgers  Steaks

Chips       Gluten in general           Juice              Pop               Bread       Salt               Sauces     Seasonings   Sugars

Sweeteners  Preservatives            Vinegars         Red Meats      Pickles      Crackers         Mushrooms  Milk    Cheeses

These are just a few. I'm so out of it I can't even think of all the others, but I feel like I can't eat anything. I'm so tired of food that I don't even want to eat so I just grab a can of Ensure. I need to eat more calories, but I don't have many food options.

Is there a reason you're not on Rem or Humira, chronicallyill?

Thanks Kimberlayn, I am fighting depression a little bit. I have a doctors appointment on the twelfth and that's one thing I want to ask about. My mom has been a real help lately. She's been over almost every day in the last week.

ivy6, for some reason the doctors I have, all kept me on 6mp and none of them seem to want to try something new even though I've been on it for 6 yrs and have asked a number of times to try something new. They don't seem to want to look into anything for me. Are the drugs available in Canada? I've heard those drugs are pretty harsh to so i never asked about them.

crohn'sandme thanks for your suggestions. I hope to get this under control soon. I fear doing things for my child, like bath time, because we still do it in the kitchen and I can't leave her unattended in the bath when my bowels decide to start working and right now anytime I stand up I feel like I've got to go to the bathroom. Little things like that make it hard for me to do anything. So this adds on to the anxiety, which there is A LOT of, naturally. That's just the type of person I am. Some days are better than others, but mostly bad. I'll be laying in bed so exhausted that when she cries my guts just tense up and I get this shooting pain like a lightening bolt through my tummy. I know it's just nerves, but no matter how much I try no think about it and to divert my thoughts and stress it just doesn't work. I just started going back to the doctor when I found out I was pregnant because I knew it was dangerous to mess with while being pregnant. My baby was more important to me. I have a problem with doctors. I don't like to listen to what they want to do for me because I've had so many screw my life up, by putting me on drugs that were really bad for me and caused long term damage. Another issue is that there wasn't a G.I. close to my area that I liked. At one point if I wanted to see my G.I. it was an 8 hr drive away, which got expensive just to see him for 10 mins. We usually made a trip out of it, but we couldn't take a trip once a month to see someone so far away. There now is a new G.I. coming to a city 1 hr away. I'm getting a referral from the doctor I'm sseing right now. I hope beyond hope that I get a long with him. I think if I have a doctor nearby I will do better.

chas036 I have read part of it a few years ago, but I didn't think I would have the will power, like you said, to keep up the diet. I have very little self control. I do think it would work, definitely. I just don't think I could do it. I'll try to find the book and I will give it a try though. My motto is "Don't knock it till you try it"

Thanks for your posts hope to hear back from you again :)

Thanks kit good to have some support :)

Hi I have a list of things I don't eat and most of the things you mentioned are on it I can eat white bread and lots of other things. You should write a list of things you can eat for us. I know it is a worry about the BM's and babies lots of us have managed best to not stress out over it you"ll think of way's that willl work for you.Definitely get another med. your not doing good something needs to change with your CD care. Don't give up get determined and the new GI sounds great. It could be you need a hospital stay to get you on top of things again. who knows but ensure cain't keep you going forever alone so try to get in to your GI or PG as soon as you can. Take your Mom if you need to for support and she can give the Dr. a report on how things are going to .Your lytes could be down. lol gail

Moedon1. thanks for your post. Right now I am stuck on those drugs because I am trying my darndest to keep breastfeeding. Although I know it's hard on my body to keep up to both me and my daughter. I'm trying to reduce my milk supply by introducing formula, I can't just quit cold turkey it hurts to much when I get engorged from not feeding her. At least she will still get part of the benefits from my milk. I just don't eat enough to make all the milk she needs in one day. I have to eat a gluten free diet because it makes my tummy burn so badly and I get really explosive, gassy D. I just went to a BBQ last night and had a couple of burgers, just the burgers and i forgot to ask if they were made with crackers and man did I pay for that last night and this morning. It cleaned me right out. It really sucks because I am addicted to carbs. If you get your gallbladder out won't you have issues eating fatty foods? My aunt had to have hers removed and she gets really bad D if she eats anything high in fat. I get to see my internist in June to discuss possible drugs. I hope I'm done breastfeeding by then so I can try something different. I'm tired of this drug. It doesn't do anything for me, but make me sicker all around. When I went off of it when I first found out I was pregnant I felt a million times better. At that point I didn't know I was gluten intolerant. While being off the drug I had a better feeling for what really bothered me and I pin pointed majority of the foods I can't eat. That was the positive part of stopping the drug. In November, 3 months before I was due I had to go back on it because I was at risk of complications, cause of weight issuse and stuff. When I said I felt a million times better it felt like a surge of energy had hit my body and i felt invigorated. I think I took advantage of that and ate what ever I wanted. I learned my lesson though, because I feel like crap now. I had this thought in my head that because I was pregnant that there was a possibility that I would go into remission. Yikes what was I thinking LOL. :) Well now that I know a little more, it makes it even more difficult cause I have to say no to myself a lot more when food is offered to me. I find I'll eat before I go to a get together so I know that I'm full and won't eat the "BAD" stuff. When I go to see my Dr. I want to ask him about that new drug LDN. I talk to a lady on Daily strength. Another site I talk on and she is on it and went from 15 to 20 BM's a day down to 1 to 3 and no pain. She's feeling great and no side effects of the drug. Really cheap as well, like 30 dollars a month. It will take a lot of persuading I think and maybe a few docs before I can get my hands on it, but I'm staying hopeful.

gacrohns, Heres a list of the foods I can eat.

potatoes    turnips    yams    sweetpotatoes    yogurt    eggs    old cheddar    rice    chicken    fish    oysters    pork?    zuchinni     peaches  jello?     rice krispies        soy milk  egg noodles   kidney beans?    rice crackers    gluten free products    ricecakes   mango     frozen yougurt? Peanut butter? tea

The question marks are the ones I'm not sure of, but I eat anyways. I can't not eat sugar. When do you know when to go for a hospital stay and how do you go about it? Do you ask your doctor?

 

bump

thanks crohnsnme I'm doing really good today, not so much my guts, but I feel happy. Happy mothers day to you to, if your a mom?

I've been pumping to relieve the pressure of my milk. I do hope my milk dries up by the middle of june so i can try something new in the drug area.

I find that turnips mixed with mashed potatoes are my thing. They make me feel normal because I can go hours without using the bathroom, which is so nice. They do something in my intestines that just make me feel so good. I just am to lazy to make them all the time.