Running out of options

So, you've been cutting gluten from your diet, too, Lila? *Feeling very hopeful... I've been thinking about trying a gluten-free diet myself... I have to wait before I can try it... but as soon as I have the means to, I'm going to. Really want to get to feeling better*

I'm going to be doing that, too.... *Already taking a few steps right now... put my junk food out and told my roommates that they can help themselves, I may end up having to eat some of it myself so that I don't waste, but I'm not going to do that until I'm feeling a little better... and after the junk food is gone, I'm not buying any more* And I've reduced the amount of sugar I put in my tea considerably...

:)... Yeah, it is.

*I have such a sweet tooth... just cutting down on the sugar in my tea is difficult. But... I used to be a real big chocaholic, too... and I had to give up chocolate because it caused me so much pain. Of course, it's probably easier to give up something you know causes immediate and intense pain after you eat it... Probably not so much easy to give up something that doesn't effect you right away...*

I want to feel good again so badly, though... *Definitely a big motivation for cutting down on my sugar intake...*

Hi Mike,

Seems you are already on the right track when it comes to diet. I must say it's quite strange that the bloating causes pain for you at night. Luckily the majority of pain i was having (and i was having consant excrutiating pain) went away after my surgery. The only pains i get now are gas pains and the occasional crohns type pain which always scares the life out of me as i can't imagine going through that kind of pain again all day every day. But unfortunately none of the anti-gas drugs seem to work for me. Although my GP hasn't tried me on many, maybe i should enquire about these. I don't really know the names of the drugs to ask about as the drugs in Ireland all have different names to the ones i read about on this forum.

Where is your crohns located if you don't mind me asking? Do you have a bad stricture or scar tissue at the moment? From what i have been reading, most peoples bloating dies down at night and is almost gone in the morning. I always go to sleep lying on my back as i feel it helps (even if i do look like a dead body!!). Are you seeing a GI regularly to keep an eye on the disease? I personally reckon that when sleep becomes a problem, things are pretty bad and you need to get help.

Hi Mike,

That's great - at least you know that not eating after a certain time will give you some relief - although i know it's hard to adhere to it every night! I did the same last night but had a couple of beers. NOT a good idea for me! My tummy's a little disgruntled today.
So you're having tests done and they're all OK - that's good news. I wonder what's causing the bloating then. Maybe it's just an unfortunate side affect of this disease. The blood transfusion sounds kinda scary. I guess it was necessary though under the circumstances. I needed one after my resection in 99' but i am so grossed out by the sight of blood, that i refused it. And luckily i lived to tell the tale!!
I've had lots of tests done recently and have to wait until August to find out what the hell is going on. I also ended up in hospital a month ago and was diagnosed with a hiatus hernia. I had crippling pains all day and then the vomiting started - i thought it was crohn's related but it turned out to be the hiatus hernia. It's the last thing i would've expected. I don't have any symptoms apart from the pains & vomiting which happens maybe once a year. I guess we never know what this disease is going to throw at us next.
But i'm thankful that i can manage to hold down a full time job and do most normal things.
You're right though it's great to be able to talk to others about this as it's not something you can bring up in conversation with friends or colleagues!

Lila......