Need support and encouragement

 

Hello everyone

 

I need to hear that things are going to get better.  I read the forum probably 3 times a day and search for some answers. 

I went to my GI's office today in the hopes of seeing her but she will not be in for another couple weeks.  I have been sick since Jan and things are getting worse.  I had a colonoscopy a week and half ago and since then I have done a downword spirial to a whole other level of pain.  

 

My GI wants me taking salafolk enema's twice a day (morning and night) but my bum is so sore and spastic that I can't keep it all in.  I can't sleep because of the spasms and when I do go I am in severe pain from pushing so hard, but I can't control it.    I have been taking muscle relaxers, pain killers and just took my last sleeping pill to try to get through the night.  I don't even know if I can take these when I am on alll the other meds.  I filled a old prescription for asacol the other day and started taking 2, 2times a day because I figure it can't hurt.  Salofalk is from what i understand Asacol but in a enema form.  I figured since I can't get it all in I might as well take some of the pills as well, as back up. I just took my fourth injection of Humira tonight.I have been on antibiotics for two months now for my fistula which doesn't seem to be getting better to top things off.  Every night I pray I feel better tomorrow and there are times I have relief but the mornings and nights are hell. I don't know how much longer I can do this.

 

I am going to go to a walk in clinic tomorrow to talk to a Family Dr since my GI is away but I don't know what they can tell me that I don't already know. I just want more sleeping pills and to make sure I am not harming myself by taking robaxin (muscle and pain relaxer).  To be honest I don't have a lot of faith in Family Dr when it comes to our disease.

 

I need to hear from someone who understands and can tell me things will get better.  I have Crohns in the first 30cm of my large intestine and have had it since I was 15.  I was recently in remission about a year ago for almost 4 years.  I forgot how terrible this disease can be.

I am still working right now but I am not sure if I can continue if this gets worse.

 

I am sorry for the rant but that is what we are all here for right. 

 

Please someone send me some relief with a tip on how to get through this. 

 

Signed ..... sick of being sick

:(... *Hugs tightly* Wish there was something I could say that could help... but I don't even know how to get through my own problems... *I'm working on it*


I hope you'll get better... Try to look on the bright side... Hopefully, it won't get worse, right? You can only get better from here! Hope, hope, hope...

Hi Red Can you take some time off work so you can get more rest the stress must be high for you now. What about getting admitted for awhile till you get more stable sounds like your going threw a bad go of it. I figure the hospital is the best place when things get beyond our control. Maybe the antibotics are causing sideeffects. Hang in there girl surely the Dr's can give you some help.lol gail

Thank you sooo much everyone. Gail I wrote down the names Bentyl and Levsin and will take it to the Dr.'s office today.

This morning was a little better than the last few so I will keep my fingures crossed that maybe things will turn around soon.
Last week I took some time off but I found if I stay home I just get depressed. If I can get out of the house, it at least helps me get through the day. I hope I can continue to work as it is the only thing keeping me from self pitty. I have a job that is pretty flexiable when you need it so I am fortunate.

All I have to say is thank godness for baths. I must be the cleanest person on the block with 5 baths a day. Right now it seems to be my only relief. That and this forum which helps us pull through . I hope I can be there for someone down the road who needs encouragement.
I have started a liquid diet today as from what I have read it might help.

I will keep you posted on my hopeful progress.. thank you for your prayers.