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Any ideas why I'm so tired....

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Crohn's Disease
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Posted 5/28/2008 11:30 PM (GMT 0)
I'm beat.. I've just finished my daily B12 shots for a week. I'm taking Humira, and I know I've had a lot to deal with recently. But
I thought getting 1000mg of B12 a day I should be bounding of the walls, but nothing could be further from the truth.
I feel like I could wrap myself up in a cocoon and never surface again. Any ideas guys?????
Posted 5/29/2008 12:07 AM (GMT 0)
Have you checked to see if your anemic recently? If not that, Crohn's makes me tired all by itself. Which is really frustrating!
Posted 5/29/2008 12:19 AM (GMT 0)
Unfortunatelly it comes with the territory. It could be iron deficiency, inflamation, infection, fever, poor sleep quality, the medications....
I have learned to treat as many of those conditions as possible all of the time and live with the residual.
So you are taking b-12 but are you also taking folic acid, and iron?
Sj
Posted 5/29/2008 2:27 AM (GMT 0)
I am always tired, sometimes more than not. Since starting Humira, more so than Remicade.
Posted 5/29/2008 3:18 AM (GMT 0)
I too am exhausted--so slow, and so weak. Mine is due to the anemia and not absorbing food. Today, I had some soy milk with cereal--2 hours later, I was feeling like myself for the first time in eons. However, it wore off. How about more protein? Can you take in soy, turkey, chicken?
Posted 5/29/2008 4:30 AM (GMT 0)
Vicky,
Im always tired too no matter how good/bad the CD symptoms are. I often wonder why myself and hope each day I wont need to "nap off" at some stage - life is too busy to feel this way!
Take care
Joanne
Posted 5/29/2008 4:44 AM (GMT 0)
Taking B12 didn't do squat for me in the tired dept either, exercisng and cutting out junk from my diet sure has though....I still take my B12 of course, I don't want the nerve damage to start up again (tingling/pins&needles in the fingers).

:)
Posted 5/29/2008 1:50 PM (GMT 0)
Yes it come with Crohn's being tired all the time. Don't get down about it if you feel tired take a nap and who cares about what other people think.
Posted 5/29/2008 2:00 PM (GMT 0)
I realize you all feel so tired, I always have...But this is kinda different. It's almost like losing your will to carry on!!
For instance, I'm meeting my grand children and their Mom & Dad in Florida in November, and I really don't want to go...
What kind of Grandma am I, that I can't even build enthusiasm for something I really want. All because if I think about
doing the parks etc; I crumble. I haven't seen those kids for years. They live in the UK, and all I can think about, is how nice
it would be with just me and my husband!!
I'm a bad bad person, who needs a kick in the rear LOL
Posted 5/29/2008 7:59 PM (GMT 0)
Ohw bless you, your not awful at all!! perhaps you should explain that you just won't be up to much that just seeing everyone is all you can manage then they won't expect you to do long walks to the park and things.  I really hope you will have perked up a bit by then so you can enjoy yourself more, it's just not fair.
Posted 5/29/2008 11:13 PM (GMT 0)
Thank you Miss UK!!
Posted 5/29/2008 11:32 PM (GMT 0)
Hi Vicky I was not looking forward to shopping this week really felt like I couldn't care less but once I got out that old tired feeling left me and so I am thinking perhaps I'am a bit depressed. I actually enjoyed it sometimes we try to talk ourselves out of doing things but the energy kicks in when we need it. lol gail
Posted 5/30/2008 3:18 PM (GMT 0)
Oh Vicky! You are not a bad person, you are tired and I completely understand. I just had my b12 levels checked last night and they are probably going to come up low (found out I had enlarged red blood cells so b12 is lost likely low) I am hoping the b12 will be added and I hope I may not be as tired. I wonder if your b12 is being absorbed? Or maybe you are anemic also? I know CD makes us tired but it sounds like you may need some extra help. I had a Coworker with CD and she was on an med to keep her awake more used for people with narcolepsy (don't know the med name) good luck! Karen
Posted 5/30/2008 3:24 PM (GMT 0)
Was it Provigil?
Posted 5/30/2008 3:50 PM (GMT 0)
Rider Fan, that sounds familar it may have been Provigil.... Karen
Posted 5/30/2008 4:29 PM (GMT 0)
Karen, the doc is concerned I'm not absorbing B12 from any source, thats why I had the daily shots. Now I go to weekly
for 2 weeks, then my blood will be checked again. Apparently I have him stumped.

Goodness knows what they will do with me, if this lot comes back low. Last time they checked still in the low 200's even
with shots
Posted 5/30/2008 5:48 PM (GMT 0)
Vicky, I am so sorry you are not absorbing the b12. I may be in the same boat. No injections yet but I do take the pills, I guess I don't absorb them well. I hope the next results come out ok for you! Do you give yourself the shots? I am worried I may have to do that. My hubby volunteered to do them too but I hate for him to have to do that. good luck! Karen
Posted 5/30/2008 6:04 PM (GMT 0)
Yes I do my own shots. They are surprisingly easy...

My husband offered too, but he was too keen, if you know what I mean LOL
Posted 5/30/2008 7:13 PM (GMT 0)
My hubby was too keen too, what is it with men somtimes :) Karen
Posted 5/31/2008 4:29 AM (GMT 0)
Vicky, This dreadful disease can zap the life out of anyone. It is draining, and depressing and worst thing , it is chronic. You are not a bad person. This DD is bad. It takes the zip out of our doo-das! ...takes the joy out of life sometimes.
Please don't let this go on too long. It may be that you are anemic but I suspect that it may have something to do with depression. Are you taking anything for depression, anxiety. ? YOu have so much to deal with physically.... no wonder you are tired. Sometimes we just need to go on an anti-depressant for a little while, just to give us a little boost. I managed all these years to "put up a good front' and 'smile through everything. etc...and then my daughter tried to commit suicide and it knocked the wind from right under me. I couldn't pull myself up anymore...there was nothing but fatigue, and lack of joy....I finally agreed to take an anti-depressant(kicking and screaming that I was doing just fine without it, and that I thought it a sign of weakness if I gave in.)... but it isn't . It made a world of difference. I am still taking them, although I have tired to go off them a few times, and find that I just can't handle stress the way I used to....there have been just too many "bad things" to deal with over the years...my mind and body are weary.
Anyway.... I hope you get your zest for life back soon.... I am keeping you in my prayers dear Vicky...
Mary
Posted 6/1/2008 1:21 AM (GMT 0)
From the CCFC..."ask the doctor";

Fighting fatigue

DEAR DOCTOR: I’m a 53-year-old male who was diagnosed with Crohn’s disease in 2000. My intestine was blocked and 12 inches of my bowel was removed. My biggest problem now is that I’m always tired. My only medication is a B12 shot every three weeks. Should I be taking anything else?

DEAR CCFC MEMBER: Fatigue is a common complaint of patients with Crohn’s disease, even when they are in remission. In general, fatigue can be explained by nutritional deficiencies from either active disease, previous surgical resection or bacterial overgrowth. This includes vitamin B12 deficiency or iron deficiency.

Many patients with a chronic disease (especially chronic inflammatory diseases) will experience fatigue because of the underlying chronic inflammation and the struggle of your body to try to control this inflammation, thereby expending “internal” energy.

Other causes of fatigue, which may not be directly related to Crohn’s disease, such as depression, thyroid problems and hematological problems should be explored.

:)
Posted 6/1/2008 12:50 PM (GMT 0)
pb, thanks for that. I guess with 2 inflammatory problems going on, I probably can't expect anything less.

It was nice of you to take the trouble to find that piece for me....
Posted 6/1/2008 4:51 PM (GMT 0)
Hey dunny it was no problem at all...I have the CCFC website bookmarked which is where this tid-bit came from....I also have many, many other IBD related links bookmarked, including the CCFA...they are great sources of info and are updated from time to time when they have something new to share.

:)
Posted 6/3/2008 2:21 AM (GMT 0)
for me fatique is one of the first signs I need to get back on my depression meds,hope you feel better soon!! Also if it is the walking around the parks that you are worried about why not look into renting one of the motorized scooter things (not sure what to call it my brain isn't working lol) they usually have them at major parks and it would make it alot easier on you and also on less thing to worry about!! :)

Post Edited (chelsea_doll) : 6/2/2008 8:27:49 PM (GMT-6)

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