Have some insurance questions for the uninsured..

So i have been recently diagnosed with Crohn's and it unfortunately "caught me with my pants down", if you will. I'm a hairdresser, and our work insurance is insanely expensive. I had this sense of immortality and never signed up so I am currently uninsured. The gastro doc has been super helpful by giving me samples of my Asacol until i hear back from Medicaid. If i'm denied, i'm going to have to figure something else out. I've called some insurance companies and they mainly say Crohn's is a part of their "denial" list. I'm moving to Florida in 7 weeks and will be job hunting asap as soon as i get my address from the apartment complex. So is it true that these companies can flat out deny you individual insurance forever or is there something i'm not understanding? As a hairdresser, a lot of independant salons don't have group insurance so i'm wondering if i need to work something retail just to get the insurance. I enjoy doing hair though, in an independant setting as opposed to a walk-in place.

In NY state you can not be denied coverage due to a pre existing condition although there can be a waiting period for coverage for said condition if you had a lapse in coverage of more than 63 days. That being said every state has their own rules and you would need to contact Florida's state insurance board to find out what theirs are.

Depends on your state's laws. Clinical trials are worth looking into, and some drug companies have reduced price programs.