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Posted 9/3/2008 5:24 PM (GMT 0)
Well for the second time my ANA results are high (1.640). I'm still waiting to find out, if this is the Humira causing drug
induced Lupus again.(this happened with Remi) or whether this time I have cause for concern, considering they are high!!
I guess this is just another bump in my long road.
Also is this a possibility why I have pancreatitis??
Posted 9/3/2008 9:38 PM (GMT 0)
I dunno, Dunny. But I wanted to bump this back up where hopefully someone will see it who can answer your question to one degree or another.
Posted 9/3/2008 11:33 PM (GMT 0)
Thanks C2 LOL
Posted 9/4/2008 12:31 AM (GMT 0)
Boy I sure do hope that you aren't having to stop the Humira too. I don't have any answers for you, but wanted to let you know your in my thoughts.
Posted 9/4/2008 2:20 AM (GMT 0)
I guess it all makes sense now. I've been feeling over the top fatigued, dreadful achy body, and a new wheezy type cough.
If my specialist doesn't refer me to the rheumy I saw before, I'm gonna go ahead and do it myself. I'm so tired with new
complications cropping up every time my blood is drawn. Chronic pancreatitis was enough to try and take in, now this. I
guess right now a deep depression is setting in. I've just had enough!!
But I'm so glad you are all here to listen to me whine...Thanks LOL
Posted 9/4/2008 4:00 AM (GMT 0)
Dunny, the symptoms you describe are some of the same ones I experienced when I was first diagnosed with lupus just this past June. I had to stop Remicade because of the lupus antibodies I developed causing increasingly worsening symtptoms. My time on Humira was short, just 2.5 months. I developed lupus antibodies again and had a severe reaction. Though my last shot of Humira was in December, by March I started feeling worse once again. Over three months of testing the rheumy finally diagnosed me with full blown Lupus. Were the Remicade and/or Humira responsible? They won't say but I am thinking so. Please get yourself to a rheumy ASAP. Make sure they do testing for the lupus antibodies, not just an ANA.
Posted 9/4/2008 5:40 PM (GMT 0)
Ides, I've decided to give this specialist a week to get back to me, if he doesn't then I'll be off to my old rheumy myself...
All I know is that I feel pretty lousy, and it doesn't seem to be my CD right now. I have no motivation to do anything, but I'm
putting that down to fatigue. But it just isn't me, and I find it very frustrating....
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