Wheat Allergy May Be Root Cause - It is for Me!!! Cutting Edge Stuff A Miracle for some of us!!

It is true that wheat allergy is hugely under-diagnosed, but eliminating it does not totally cure everybody. I am not sure if this is because there are other foods that cause problems or that become problems due to permeable gut lining (from wheat inflammation) allowing food antigens through to the blood or if there are other causes that are completely unrelated. I have been off wheat for so long (about 8 years) that I had to start eating some prior to a Celiac test. That did not cure me though. That is not to say that it will not work for people that are only wheat sensitive.

And the 2009 Nobel Prize in Medicine goes to.....GlutenFreeGirl, for her discovery that wheat allergy causes Crohn's disease!

 

In all seriousness, I think what GlutenFreeGirl is failing to realize, in all her enthusiasm, is that (a) either she was misdiagnosed with Crohn's when she actually has Celiac, or (b) she has Celiac and/or wheat allergies in addition to having Crohn's.  It's possible to have both, but to say that wheat allergy is the cause of Crohn's is not only irresponsible, it's downright wrong - and possibly a dangerous claim to make.

I am glad that someone here has found some relief and I do feel that personally I think that all of us should of been tested for it and lactose intolorance,just for the sake of ruling in or out these two problems in people . I think it is something we deserve to know. lol gail

Peace ya'll she is a newbie and does not understand our perspective.
Of course we encourage people to do what it takes to get them well, short of anything illegal
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GlutenFreeGirl,
Please understand it is not you that we are having a problem with. It is the subject, especially using the words "cause" and “cure,” because I would require an autopsy before I would ever think of using the words, even then it is a case study. Cause and cure are rather inflammatory subjects on here. Unfortunately someone comes along every couple of weeks with something very similar, so for those of us who have exhausted everything it is very tiring to keep hearing about something like this. I feel that sometimes it gets to the point that it is an affront to our intelligence, because people think we have not exhausted every possible thing. (i.e. like getting tested for allergies)

I am glad this works for you, and hope it continues to.
I am sorry you are feeling the negative energy from the inflammatory nature of this subject.

Well, others here have gone gluten-free and had good results, so it is not really entirely a new idea. Some do not have that result. As I said before, I have been without any wheat for many years and Crohn's is still there. I admit that I am not one of the really sick people here, but the disease is present. I believe that gluten intolerance is ONE of the factors that trigger Crohn's, but there are others (Gut infection, stress, NSAIDs, alcohol etc.). I also don't think that gluten intolerance tests will show up all people who would benefit from eliminating gluten (something to do with IgE and IgG both being separate indicators of sensitivity and testing only being done for one of those two). Certainly, it is worth trying - it is fairly easy to do and harmless if it does not work.

are you the famous blogger-author glutenfreegirl? I am a big fan and have found 80% relief from all my crohns problems due to going gluten free.

glutenfree girl:

I am glad you have found something to help your symptoms, although, if you were truly "cured" from crohn's you'd be able to eat wheat without any problem like the millions of other people in the world who eat wheat with no problem whatsoever. If you eat wheat, you'll get more CD symptoms, so you are not "cured" (unless God cured you ). There are genes involved as well as something that triggers the disease.  

The word "cure" is a very sensitive one around here. Most of us have tried diets that help our symptoms. Some people go into "remission", others don't. You may find that although your symptoms are better, the CD is still present and after many years may cause problems. This has happened to people before.

Oh, if you really miss your bread, you might want to try real sourdough breads or soaked/fermented grain bread. These types of breads are sometimes tolerated even by celiacs. Just be careful and watch your symptoms closely. Do a google about sourdough and celiac. It's pretty interesting.

Best wishes for great health!

If I see an allergist, can they do tests to find out what foods I'm allergic to? I'm very curious.

Ok guys...like mmmnavy said...peace.  This is supposed to be a site that EVERYONE should feel comfortable coming on and sharing, venting, and supporting each other.  Not making them feel stupid, which I feel many of you did.  If this is what works for her, then we all should be supporting her.  She probably will not post on here again because of all the negative responses she received.  And she may have some great advice, information, and support that could of helped someone else. 

Just remember that we're all in the same boat...even though the storms may not be the same.

Thank you to those of you who were supportive. Yes, I have faith and am optimistic by nature. God did heal me of my fistula without surgery. This is not a claim I have heard any one else make. I'd like to hear about it if there are others who have healed from a fistula naturally (mine was in the worse location). Since then, 6 years ago, I have been stuck with this diarrhea and once in awhile the pain would come back after the bouts.

I now understand why there was such a negative reaction! I sympathize with all of your who have suffered - but have faith! I was healed by God from my fistula and now I feel that I have found a cure for my asthma and diarrhea that remains. The asthma part is my biggest worry at this time and to think I can get off the meds after being on steroids for 15 years - is amazing! I have been praying "God, I know it's a long shot, but could you get me off my asthma meds and heal me?". And now it's happening!

I was self diagnosed but confirmed by seeing a naturopath who told me that the Crohn's is a side effect of Celiac disease (I called it a wheat allergy because people understand that better and I understand the difference) and I don't have any problem understanding this as a big possibility because frankly, disease is more simple than most people make it out. Doctors put labels on groups of symptoms and call them diseases, but in essence, they are simply symptoms and it doesn't matter what they are called, especially if no one has come up with a root cause. I am also seeing a physician who was also supportive that the new diet is helping, and never said "No, this can't cure you".

So call it Crohn's, or call it nasty abscesses and an inflammed colon. It doesn't matter what you call it, if it clears up by a diet, then great for those who are lucky enough. I do feel lucky, and I am sorry that this hasn't worked for everyone here. I feel that clearing up the inflammation in my colon from the gluten intolerance, is just the thing the doctor didn't order. No doctor ever said that changing my diet could help. I think the medical community has problems with root cause analysis and just throw bandaids (drugs and surgery) on everything and think they are geniuses.

This hasn't been a Crohn's vacation - I have been without the abscesses for 10 years now! The fistula's been gone for 6 years! God bless everyone and I pray for healing for all of you on the site.

I must have misunderstood your post. When you talk about 21 days, to me that means three weeks. And what do you mean, you have been self-diagnosed? Very confusing. On the one hand, I think you are saying you don't subscribe to the allopathic codification of symptoms into disease labels, but on the other hand, you say that you have crohn's disease. Do you have crohn's disease? Or have you experienced symptoms that those who have been diagnosed with crohn's disease deal with? Lots of things mimic some of the symptoms of crohn's.

If you don't believe in "the labels" that physicians put on diseases, then why post about a "cure" for crohn's?

And moderators, I am offended by the survey question. It presumes that gluten intolerance IS a cause of crohn's. There is no way to respond accurately without artificially skewing the intent of the question. No, I did not know that wheat intolerance may be a cause of crohn's? What does that actually affirm? That there is sound evidence and I didn't know about it. Or that I know that there isn't sound evidence that wheat intolerance causes crohn's? Which is it. Please consider removing this survey.

The inherent survey flaw has been noticed bell and submitted for mod discussion.

I am not sure if we can remove the survey without deleting the entire thread.