I feel cheated.

I understand where you're coming from. Crohn's has blindsided me more times than I care to remember. I'm 33, still haven't graduated from college, have never been in much of a relationship, and live with my parents. I'm lucky in that I've been pretty much pain free since August. I'm going to start a new diet soon (the SC diet), and am in hopes it might get me well enough to return to school, once again.

It wouldn't hurt to ask your doctor for some painkillers. No doctor ever offered me any until a year ago, and during bad times, they've been the only thing that probably kept me going. Have you ever been on Remicade or Humira? If not, they're definitely worth looking into.

I hope things look up for you! Life sucks when it's full of pain.

I have never been on Remicade or Humira. What is the "SC" diet. Do you have a link to it?

Hey buddy, more power to you. I know the feeling. I'm eating my fingers (literally) from biting in screams from the constant pain. From waking (with it being the alarm clock most mornings) through the day and night. I went to the ER finally last month. I had problems breathing (it ended up being an asthma attack). I decided to tell the doc about the pain and I swear he never touched my back. He gave me muscle relaxers that sort of tickle at the pain without doing squat. I can't take Max. Strength Tylenol (I damaged my liver through my own stupidity as a teen) and I can't take aspirin or ibuprofen bc everything says its bad for the CD. And when I asked that stupid doc to make it stop, he never bothered to see my back or hips. Never experienced a doc who wouldn't see what was hurting before. I hate being made to feel as if I were a junkie when I am trying to make a some kind of living to pay back all the debts and every move screams through my joint while my stomach feels as though its eating itself.

I would say that being drunk isn't the best idea. The stuff I read on CD said alcohol could make it painful. Sorry, I mean, be mad buddy. I just figure...at some point, my body will be used to this constant pain. I mean, it has to right...'cause a body can get used to pain meds...so it should get used to pain.

Yes, sometimes when it is really bad, the bones in my legs feel hollow and aching. It is very odd.

I go to bed now, I am glad I posted. Thank you all!

Here are the links to the 2 threads that got me interested in the SC diet. At first, I wasn't sure I'd have the fortitude to give up some of my favorite foods for such a restricted diet. But after thinking about, I figured it's at least worth a shot.

https://www.healingwell.com/community/default.aspx?f=17&m=1262312

https://www.healingwell.com/community/default.aspx?f=17&m=1264857

When I was in school, I never told my friends I had Crohn's until after the first time I had to drop out. Since then, it's gotten easier to talk about. I've even met 3 other people at my local dog park that have it. More than likely, at least one of your friends will know of someone who has it.

I've gone through periods where I just lose hope and give up on ever accomplishing any of my dreams. It gets tiring to be disappointed every time Crohn's rears it's ugly head and wrecks your plans. I kind of just try to hold onto hope that they'll come up with better treatments as time goes on.

It sounds like you haven't tried the more recent and advanced drugs. What I figured out was that I was getting no relief from pills cause they just did not stay in my body long enough. So I get injections of MTX. Pred is a steriod, so it can cause steriod induced psychosis. Please do not give up there are things that you can still try.

Hi Telco how 's it been going ? Kind of missing you so hope you"ll drop us a line. lol gail

Thank you all for your words of encouragement and understanding. It has meant a great deal to me. It is the old standby, you know: "misery loves company". Not that I am glad at all that any of you have this thing to deal with, I would not wish this on anyone... but it is good to know that people out there understand.

Most of you will probably see what I say as a complete bummer, and I am sorry, but is it how I honestly feel. It's like...I dont know. Most people with a chronic disease, there is some timeline or something, know what I mean?

Not that I want to die, but sometimes I cannot help thinking: Why couldnt this just be terminal, you know? Let some doctor give me a timeline as if it were cancer, and then I could just throw caution to the wind, spend my savings and have a few laughs. I may not be getting this across right, I am not sure.

On that note, are there any old people with this? What can I expect in terms of life expectancy? I can feel that the human body is not meant to take such a strenuous toll on a daily basis.

I know that I should know all this by now, but honestly, I have volunteered to keep myself in ignorance about a great many things. When I do research on it online, within 5 minutes I feel like I want to throw my computer out the window and then pass out. Call it a web-induced panic attack I guess.

Thank you for your time.