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Was reading again and thought I'd ask. ..

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Crohn's Disease
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Posted 10/27/2008 9:35 PM (GMT 0)
Has anyone got or had TB in there intestines or bones plan to do more reading about it . Or even there lungs ? lol gail
Posted 10/27/2008 11:32 PM (GMT 0)
Well I did go off and do some more reading about it and again wandering when they do the scopes do they check for that? Wow it is a little scary to say the least . I found quite a few sites about it . Sure makes a person wander. lol gail
Posted 10/27/2008 11:47 PM (GMT 0)
You should have a skin test for it about every 3 years.
Posted 10/27/2008 11:48 PM (GMT 0)
Thanks Navy it is a good thing to do I think I don't remember anyone mentioning it before. lol gail
Posted 10/28/2008 12:07 AM (GMT 0)
Has most of us here had a TB test the symnptoms are very much like crohn's . lol gail
Posted 10/28/2008 12:28 AM (GMT 0)
Gail, are you referring to Tuberculosis? If so, the symptoms primarily affect the lungs, with a cough. The symptoms don't resemble Crohn's. Julie:)
Posted 10/28/2008 1:18 AM (GMT 0)
Hey Julie there is TB of the lungs ,bones ,tonsils, intestinal .Yes that's what I'am talking about. lol gail
Posted 10/28/2008 4:24 AM (GMT 0)
You have to get a TB test to take a biologic, like Humira, enbrel, remicade. I also have to get regular tests for my job (i'm not at increased risk but others in my agency are and its one size fits all policy). They always give a little lecture about it and I thought it can affect the entire body but its spread through the lungs. It used to be called wasting disease because people get so frail and cough so much when they are very sick with it. The nurse always says its treatable though.
Posted 10/28/2008 7:45 AM (GMT 0)
I was told that if you're taking prednisone, don't bother with the TB test. It will come back negative even if you have it. I had a similar experience with Valley Fever. I got it because the prednisone weakened my immune system, but all the tests for it came back negative. They just treated me for it anyway because they were certain I had it. Once I was off the prednisone, I tested positive for the Valley Fever antibodies.
Posted 10/28/2008 10:44 AM (GMT 0)
Gail, I never realized it could affect other parts of the body!  I learn something new every day, lol! smilewinkgrin    I have to get a TB skin test every year because I work in a hospital.  Blessings, Julie
Posted 10/28/2008 11:39 AM (GMT 0)
Spookhurst Yes I did read about the steriod causing problems with the test. As far as I can remember I was on the pred. at the time I had mine. Julie just goggle TB intestinal I found the symnptoms in searching. lol gail
Posted 10/28/2008 4:47 PM (GMT 0)
Thanks, Gail! Blessings, Julie:-)
Posted 10/29/2008 5:47 AM (GMT 0)
Intestinal TB is much more common in the third world. As an interesting side-light, the treatment for that is something called bacillus Calmette-Guerin (BCG). This has recently been proposed as a treatment for auto-immune diseases due to research that has shown a cure for diabetes in mice (Human trials ongoing). It would be a laugh if the third world has been curing Crohn's with an eighty year old medication that is really cheap by accidentally treating it as intestinal TB.
Posted 10/29/2008 11:10 AM (GMT 0)
Thanks Keeper I"ll google that med later. Just found it kinf of odd that alot of us are on steroids at the time we get our TB test. Now that's spooky. lol gail
Posted 10/29/2008 12:38 PM (GMT 0)
Hey Gail....I did not know about the TB either and I have done a lot of research into things for my job.  I had a TB test when I was in college for education.  You could not start student teaching without getting tested.  All that happened before I was diagnosed so I think it is sure I was not on pred when I had mine.  I was just glad I passed another test in those days!

Posted 10/29/2008 7:02 PM (GMT 0)
Doc did a TB test on me before I started Remicade. I was negative for it, I was shocked though as I could swear I have Two Bellies...
Posted 10/29/2008 7:08 PM (GMT 0)
Hi Sniper better two bellies I guess.I spent a couple hours today reading about it is is scarry how much like crohn's it is from mouth yo anus too and alot of the same symnptoms .Were you on steriods Sniper? lol gail
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