So life has been very good the past week.....I got out of the hospital, after a 16 day stay, last friday, it was rough in there, lots of ups and downs, 2 surgeries...but since i took my first remicade, i've just been on a miracle road of recovery, Its been almost 2 weeks since that remicade dose, and i have my next one tomorrow....
I went into the hospital in very rough shape, big time flare, i was down to 119 pounds, i'm 5'11'' and male, so not very healthy....going to the bathroom all the time, weak, tired, and feverish....fistulas and abscesses make it impossible to sit, and near impossible to stand and walk....so i was bedridden, had been for weeks...........
after 16 days of hospital, amazing doctors and nurses helping me and coming up with a plan of attack for my crohns...diet and drugs, and all that........I left the hospital at about 124 pounds and feeling good, re-energized and ready to start my new life, and start down the road to recovery.....things have been almost unreal.....as of this morning i weigh 135 pounds, i'm gaining weight and gaining strength everyday, everything i ate seems to be staying in just fine.....no stomach pains ever anymore, seems like i can eat whatever i want, but i'm keeping it healthy, well i've snuck some snacks here and there....can't kick my crackers and popsicle habit i developed in the hospital, lol....
the only issues i'm having that i'm sure will resolve themselves over time, is my weakness, especially in my legs, my legs feel like the have no muscle at all, probably from being in bed for so long at the hospital and before the hospital, but going up stairs is not easy, serious rubber legs, lol.....other than that i feel like a normal person, just 1 or 2 bowel movements a day, sometimes formed! even my night sweats have drastically reduced to the point where i no longer have to sleep with a towel, or change my clothes in the middle of the night, meaning i can actually get a good nights sleep, without interruption, so nice, feel so fresh in the morning.....
So i guess this must be what remission feels like, its amazing, i never thought i'd feel like this again, like a normal person again, not worried about bathrooms so much when i go out in public...i still have a drainage issue due to the abscess/fistula surgeries, but i where depends, which are surprisingly comfortable, just like normal underwear, with some padding, no one can tell i'm wearing them, and i don't really care if they do, what these depends are doing for me psychologically is amazing....it makes it so i feel safe, i know if i do have an accident, i'll be ok, which makes me not worry so much about bathroom locations and such, which i think reduces my bodies urges to go to the bathroom, since i don't think about it or dwell on it.....i almost want to suggest it to all of you out there, try wearing depends for a few days, see if it affects you too, i think it will, just having that safety there relieves so much stress for me......
anyway, life is good.....i pray that all of you can experience what i've been experiencing this past week.....remission is possible, and its beautiful, i'm just enjoying every single moment of everyday, can't stop smiling...
peace and love
sully