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A few Methotrexate Questions for those on it/who were on it

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Posted 11/22/2008 10:47 PM (GMT 0)
1.  Does the Methotrexate make you break out???  When I was on both it and predisone I had the pred to blame for my breakouts.  But I have been off the pred. for almost 3 months now at least and I'm breaking out something awful.  I'm not talking little pimples.  I'm talking big red deep hurtful pimples.  Mostly on my neck and behind my head hairline area.  Also on my back. What is up??

2.  Ok last week I got to decrease my dosage injection from 25mg to 15mg (.6).  I would think I would have a little more energy then I did before but I seem to have less energy or about the same as I did up on 25mg.  Has anyone decreased it and felt the same? 

3.  Those on the injection stuff....One little vile of it is enough for 25mg with a little left over.  My doc told me now that I'm going down to 15mg, I could put the remaining MTHX in the fridge to use the remaining the following week so I don't have to waste.  Does anyone else do this??   I saved what I had left last week and used the rest this week, but it just felt weird to me.  Like unsanitary or something.  I know doc said I could do it and I want to trust him, but do you think I should just toss it every week and use new?

Ok I think that is it for now.   TIA  smilewinkgrin

Posted 11/22/2008 11:31 PM (GMT 0)
No MTX doesn't make me break out it dries me out. I think you might want to check with the derm about that...sounds like the beginings of Hiddradinisis Supertiva (it can happen also with pred withdrawl)

I think you might want to check about uping your Folic acid, and definately get your other vitiman counts checked (like b's, D, and potassium)

I do waste the rest of the vial, I think it all depends on whether or not your MTX has preservatives.
Posted 11/22/2008 11:50 PM (GMT 0)

MMMNAVY said...
No MTX doesn't make me break out it dries me out. I think you might want to check with the derm about that...sounds like the beginings of Hiddradinisis Supertiva (it can happen also with pred withdrawl)

I think you might want to check about uping your Folic acid, and definately get your other vitiman counts checked (like b's, D, and potassium)

I do waste the rest of the vial, I think it all depends on whether or not your MTX has preservatives.

I looked that up and it definitely doesn't sound like or look like HS.   I will get in to see my derm though as its driving me crazy.

I asked doc about the uping of the FA and he said I was on plenty. eyes    I think your right though I bet it would help if I could take more.  I had all my other counts checked and only one I was told that was low was my Iron from my family doctor.  When I showed my GI doc last week and told him how she wants to me to start taking more iron, he pulled my counts and said they were not low enough for me to be taking iron.   So who do I listen to???   mad

Ohhh...  how would I know if it has preservatives?? 

Posted 11/23/2008 12:04 AM (GMT 0)
ok that is good that it doesn't look like HS, I think a Derm would be a good idea. I hope they can shead more light on this because is sounds like something is going on.

Well I would wonder is your hair falling out more?
Part of fatigue does just come with this disease.
How are you sleeping is another question.

If it has preservatives the vial is labeled, for my brand it is the 3 line under the MTX.
Posted 11/23/2008 2:23 AM (GMT 0)
Just started MTX in September so have had 9 - 25mg. injections to date. Original prescription from drugstore came in 50 mg. vials and was presribed to take 25 mg. and throw the rest out.

The clinic where I went to get the first injection made me take them back and ordered prefilled syringes from our health region dispensary. They come in a bag that says Do Not Refrigerate but I do not know about the preservative thing. The syringes are easier to do at home for me.

Posted 11/23/2008 3:05 AM (GMT 0)
That's weird. I'm on 25mg and I have 50mg vials. I just use it over 2 weeks, no one ever said anything about refrigerating. I had the first few injections at my GI's office and she just kept the vials in a locked cabinet.

The vial says it contains preservative. It also says 'single use vial', but the nurse showed me how to use it twice by injecting 1cc of air into the vial the second time I use it. This is a pretty major IBD clinic, so I have to assume they know what they're doing...
Posted 11/23/2008 3:15 AM (GMT 0)
I don't refrigerate mine either. They just sit out until I'm ready to use one. But doc told me to put the left over one in the fridge until the following week. That is odd since I don't normally put the unopened ones in the fridge. Didn't even think about that.
Posted 11/23/2008 2:31 PM (GMT 0)
I am on oral methotrexate-it causes me to break out though not as bad as what you describe.
I would try taking more folic acid I take at least 3mgs per day when I was on one I was tired all the time-it is a water soluble vitamin so no real risk of overdose.
Posted 11/23/2008 11:54 PM (GMT 0)
If they are along your hair line, then it sound more like a case of folliculitis. It is a form of staph that is very common among those of us on immunosuppressants. It is not something to run to the E.R. about, but you should get a hold of your doctor and get on an antibiotic for it. I am trying to clear up a case of it myself.
Posted 11/24/2008 11:55 PM (GMT 0)

tsitodawg said...
If they are along your hair line, then it sound more like a case of folliculitis. It is a form of staph that is very common among those of us on immunosuppressants. It is not something to run to the E.R. about, but you should get a hold of your doctor and get on an antibiotic for it. I am trying to clear up a case of it myself.

Had to look this one up... sounds more like what it is.  Thank you!!  :-)   I have an appointment in a few weeks.
Posted 11/25/2008 6:52 AM (GMT 0)
I am glad that it sounds like you may have found an answer,but I would probably not wait a couple weeks to be seen. Even though this is a very common thing, if not treated it can become very severe. I let mine go too long once and ended up with MRSA and was hospitalized. Whenever you are on immunosuppressants, you can't let any infections or viruses go untreated. You can be seen by your primary care doc. or even just go to an insta care to be put on an antibiotic.
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