Hi Guys, regarding crohn's of the throat!

Hi Guys,

I was wondering if any of you guys have chrons of the throat? I was told I hacve it from mouth to Anus! If so, what effects does it have on you? At this moment in time, I am really struggling with my breathing. I am having to take long, hard, deep breaths to try and get a breath at all. I am waking up during the night gasping for air. Would that be normal of chrons in the throat? All advise would be welcome.

I hope you are all keeping well.

I've struggled with breathing issues but not to the point I'm waking up at night gasping for air...that sounds pretty serious. I'm not sure about Crohn's of the throat. I, too, would think that would involve ulcers in the throat.

But a couple of years ago, I was not able to get a good, deep breath. My yawns were more frequent and I never could finish out a yawn...I'd get stuck in mid-yawn not being able to get that finished-off deep breath. So I went to my Family Practitioner.

They did 2 chest X-rays within a month of each other. The first showed slight inflammation of my bronchioles so they put me on an asthma medication. The drug didn't work after a month and I just knew this wasn't asthma. So the 2nd chest X-ray showed nothing, even though I was still having the breathing problem. So they sent me to have a PFT (Pulmonary Function Test). It was normal. BUT I WAS STILL HAVING THE BREATHING PROBLEM.

I was also complaining of being very tired all the time and having heart flutters...so I was sent to a Cardiologist for an Echocardiogram and Stress Test. Echo was fine. Stress Test just simply showed I was out of shape, which I already knew. BUT, it JUST so happened the Cardiologist I went to see started out as an INTERNIST. I've found that Internists are more detailed and pick up on things that some regular doctors do not. While I was in his office, he called my doctor and asked for them to fax over my latest bloodwork. The Cardiologist/ex-Internist noticed my IRON levels were low.

Guess what kind of symptoms you can have with low iron? Fatigue, racing heart & shortness of breath. I even found a web site that describes the shortness of breath as "yawning alot but not completing the yawn". So I was put on Iron supplements and the breathing issue has been MUCH better...as well as the fatigue and heart flutters.

Get your IRON checked first...then go from there. Hope the breathing gets much better for you...that's kind of important! :)

I would suggest check with a dactor and have some tests that can diffenitly help to find what is all about.
It is true that Crohn's can be from Mouth to Anus but it take place most of the time by the Ilium.

best of luck for you and hope you feel better.

I get frequent, numerous, and sometimes quite large canker sores in my mouth and throat, very painful. I think that is what you would get from Crohn's in the throat and mouth. Not sure though, I agree you should call the Dr. in case it is something very serious.

Hi there.  I have had esophageal flare ups.  I don't recall any serious difficulty breathing.  I did pant going up and down stairs, but didn't feel the sensation of gasping.  Just pain in the esophagus.  I agree with kittikat and Nanners.  I had nearly the same experience as kittikat, flutters, some shortness of breath, fatigue, and after lots of tests, did have some low iron and was in a flare- but didn't realize it.

As nanners stated, I had a lot of anxiety over my health.  It took me years to understand and realize that I suffered anxiety and depression.  I did have all the same symptoms earlier described with my anxiety attacks too.  Lexapro has completely relieved me of my panting, racing heart, and the fatigue related to anxiety.

Best to you.  With the cost of healthcare, maybe a blood test would be the best place to start before you go through further tests for asthma, cariac, EDG.  They should probably be done though, at any rate.

God Bless,

Jennifer

I have also had a fair number of Crohns symptoms involving my upper GI tract. Duodenal ulcer, very painful oesophagus (possibly related to stricture or inflammation of gall bladder) numerous mouth ulcers, and most classic symptom of all (according to my dentist, who was very excited) the Crohn's Disease cobblestone mouth (where the roof of the mouth looks like it is cobbled, supposedly nothing else causes this). But although Crohns can cause asthma and I have heard that it may cause loss of breathing function in up to 30% of all CD sufferers, I've only ever had breathing problems in two situations; when my gut is doing badly and bleeding on a regular basis I often find myself breathless going upstairs ( 2 floors), gasping when I reach my front door; and on occasion when on antidepressants that were known to sometimes suppress the autonomic (automatic) breathing reflex. That was when I kept waking up gasping for air because my body had quite literally forgotten how to breathe and wasn't doing it deeply enough or sometimes at all. Very unpleasant, and surprisingly hard to consciously adjust the depth of breath to take in and out - really a full time concentration thing !
IMHO, what Kittikat said certainly seems to make sense to me, although of course if you are suffering from anxiety then that could be the reason. If you are not suffering from chest/rib pains I'd guess more likely anaemia, if you are then more likely anxiety. But either way, worth mentioning to your doc, you need good sleep !