Well, you are right. The GIs all have different answers. And there is a huge risk of perforation every time I go in for the process. In fact, I had that happen one time. Here are my reasons for going this route. Currently I am pretty much in remission except for a few mild spots. I am lucky (if you can call it that) that my stricture is very low. So it is somewhat insulated by muscle and less likely to perforate. To be honest the only reason that I have not opted for surgery is because the end result would be an ostomy. I'm pretty young and I don't really want to go there. I know that I will have to at some point. I'm just not there yet. But when I started this dilation therapy almost 15 years ago, there was no chance of reconnecting after a total colectomy but now there are take down surgeries and different kinds of continent ostomies. So basically, I take a risk to try to ride out disese in the hope that there will be a new therapy on the horizon.
Please don't hesitate to ask any questions. I am an
open book.
Also... I wrote this after taking my Ambien so it may be a bit babbly.