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just a vent...why is it so hard to get things addressed?

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Crohn's Disease
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Posted 3/27/2009 3:11 PM (GMT 0)
So after two blood transfusions and fighting some massive infections, I am not doing so hot.    But if I want see a GI then I have to wait until Monday.  I know it is the VA and the hosipitalist is an ok doc, but I just feel like I am fighting an uphill battle here.

I feel like I am so far behind.

ARGH!

Complete lack of family support and understanding is driving me nuts.

Posted 3/27/2009 3:23 PM (GMT 0)
Navy I am so sorry that you are having such a hard time finding and getting some relief. I can only imagine that your spirits must be pretty battered at this point and then not having any family support just adds to it. I wish we lived closer, I would be there for you! I am sure its not just the VA with crappy docs either and having to hurry up and wait for any tests, I know even with my insurance I still have to constantly battle for help.

Please know that I will definetly keep you in my prayers. I sure hope things start looking up for you soon. And come here and vent all you like, thats what we are here for.

Giant Hugs,
Gail *Nanners*
Posted 3/27/2009 4:02 PM (GMT 0)
Hi Navy!

I am so sorry you are so sick! The stress of having to deal with hospitals and doctors must not help your healing. Are the infections under control?? On the positive side, maybe more time in the hospital will help ensure the infection is totally gone. The last thing you want to do is have to come back to the hospital! Just take it as easy as you can and Monday will be here soon.

Sometime VAs are excellent and sometimes you just wonder if they could any more bureacratic. Is yours' a modern VA? Are the nurses skilled and attentive? How is the food? Are you all going to get the wicked weather this weekend??

Praying for your healing, and for skilled and compasionate doctors. Take care!
Posted 3/27/2009 4:38 PM (GMT 0)
Navy....

Sorry to hear about your down and out condition these days. Not sure if it helps, but I remember feeling completely beaten down by this disease, for months on end before my last surgery. Finally, I am doing great these days. Please keep up hope that things can get better.

I have had a lot of challenges in my work these days, and a few weeks ago, I felt like I might have to give up and find something else to do. I got this fortune in my fortune cookie that said, "If you maintain your present course, you will attain your goal." it really struck me, and I held onto it. This week was a lot better than the previous few.

Hope you get feeling better soon. You are so helpful to others, you certainly deserve a little help yourself!

- Nat
Posted 3/27/2009 4:38 PM (GMT 0)
*HUGE* hugs Navy! I had no idea you were in the hospital. I wish I was near so I could help you. I'm so sorry your family is not more supportive. I have a family members that think I somehow *enjoy* missing work so I can sit at home in pain or in the hospital.

KUP on when you get out. Did the Humira instigate the infections?
Posted 3/27/2009 11:50 PM (GMT 0)
Oh, Navy. I'm so sorry you're struggling and so sick right now. I hope you know that we are here and care and will listen.

I'm sorry, too, about your family. Would it help to talk about it?
Posted 3/28/2009 12:49 AM (GMT 0)
Navy, I'm thinking about you hon...
Posted 3/28/2009 1:27 AM (GMT 0)
(((((((((((( Navy )))))))))))))
Posted 3/28/2009 2:34 AM (GMT 0)
me too! what did i miss? what the heck is up with blood and infections?
Posted 3/28/2009 2:50 AM (GMT 0)
*hugs* To have come this far without 100% total support and understanding from family is a testament to your inner strength...but hopefully things will start going better very soon. :-)
Posted 3/28/2009 3:03 AM (GMT 0)
I know how exhausting it is to be sick and then to have to deal with the system and all that garbage too. Stay strong navy.
Posted 3/28/2009 7:57 AM (GMT 0)
Wow I am so sorry to hear things aren't better for you. I know families and friends do "get this disease and how hard it is. I do and will keep you in my prayers. "They" (who ever that is) say most hard battles make us stronger so hope you can win the war and find a good Dr. (I've decided they are priceless.)

RifaxCrohn where did you learn about all this. I thought "I would like to try that". Is this your meds and have you been on it 9 months? Would be interestedto hear the results.
Posted 3/28/2009 12:30 PM (GMT 0)
I hope you feel better soon!
Sorry to hear about your family not caring. At least you have us Crohnies for support.

Get well soon!!!
Posted 3/28/2009 1:34 PM (GMT 0)
Navy, sorry to hear your in the hospital and no support from family. I'll keep you in my prayers and hope your drs. get to the bottom of things.(((((Navy)))))
Posted 3/28/2009 5:51 PM (GMT 0)
Hey, your not spoze to be in da horsepistol.....Hope you get to feeling better and get out in the fresh air soon. I know you and old VV trust the VA to help you but I gave up on them long ago. Yes I pay through the nose for it but I feel like I get better care. Hope things are better with the VA than when I needed them. Take care of yourself and let us know whats going on. Your in my prayers....(((((Navy))))
Posted 3/31/2009 2:14 AM (GMT 0)
Navy,
Hope this finds you feeling better and getting some answers. Sorry I haven't been around, It's inventory time. I'll keep you in my prayers. Please take care. It's hard for me to imagine the lack of family support for someone who is so loving and supportive for us here on the forum.
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