does anyone have Crohn's in the rectum?

So my doc is now thinking that I have UC but my old docs insists that I have CD..
I have bad Disease in the Rectum and now I was reading that having it in the rectum is really rare for CD people but more common with UC.

So I was wondering if anyone with CD has the disease in the Rectum the same place I have it.

I may be mistaken, but I believe PB4 has CD in her rectum and colon. I do know she has Crohns Colitis, so I do think you can have CD there too, as it can be from mouth to anus.

Nanners is correct, I have crohn's colitis which simply means crohn's affecting the colon and for me it has often affected my rectom as well (proctitis), this can be very common for those that have large bowel involvement with their CD (crohn's colitis) or there are many that only have mainly their rectom affected but can also have other areas at the same time affected. When I first became sick it was affecting my anus (which is where my disease actually started) my rectom, colon and TI all at the same time and it remained that way for the first couple of yrs (I was quite a mess), since it cleared up in the TI it has stayed constant in my colon and anus, comes and goes in my rectom and I've had CD for 18 yrs straight now with no full remission.

Do not be fooled, chances are more like you have CD affecting your rectom and not a misDX of it being UC instead...regardless where the inflammation is affecting the pattern will be the same, patchy and usually deeper inflammation with CD, but with UC the entire are will be inflammed but on the surface of the lining only.

Thing is, the treatment is the same for CD affecting the colon/rectom as it is for UC, if you're having rectal inflammation you need to get on rectal meds ASAP to help nip it in the bud, cortifoam is the only rectal med I use, since none of the others ever had any affect on me and I would just get worse and worse making it harder to clear up.

And in the future as soon as you suspect rectal involvement (usually discomfort, incomplete evacuation feeling, excess mucus and/or blood are all good indications of rectal inflammation/disease, then you need to get back on rectal meds right away. Symptoms for UC proctitis and CD proctitis are identical as is the treatment.

:)

Unfortunately, yes.  It was found at my last colonoscopy in April '09.  Prior to that, my Crohns was staying in the ileum area, it has now spread upwards to my stomach and downwards to my rectum.  Boy has it wrecked havoc with my bowels.  As if Crohn's by itself doesn't do that.

I have crohn's colitis too - affecting all of my bowel and especially bad in my rectum and anus. it has wreaked havoc and now I have a fissure, fistula and abscess that refuse to go away despite multiple surgeries. :(

I didn't realise just how bad my case was because I was being 'treated' by a negligent GI. ONly on meetin my IBD GI was i told just how bad things really are.

Hi crazyharry, that really sucks. Having crohn’s in the rectum is embarrassing and so painful. I have run out of painkillers and am set to see my colo surgeon tomorrow, not knowing how I am going to get through today at work!   You say you’ve had an abscess for 3 years….. have you ever been offered setons or a drain for it? I currently have a mushroom drain in mine after the setons didn’t work well enough. But it is still draining nearly a month on, so I see the surgeon tomorrow and hopefully he can give me some answers because it is getting increasingly painful again, and fast L

Yep, me too.  All in the large intestine with terrible rectal involvement.  Originally diagnosed as UC then switched to Crohn's as the symptoms started to become pronounced (anal tags, fissure, fistula, skip patterns with deeper ulceration). 

I only have CD in the rectum. Several peri-rectal abscesses and fistulae, and small anal skin tags. Colonoscopy and small bowel follow through showed nothing else except granulomus tissue around the fistulae in the rectum. Because of the granulomus tissue, the say I have CD. No other symptoms except low vitamin D and fatigue (which is slowly getting better with vitamin D).

I do remember someone else on this forum with only rectal CD. Seems like we are a rare breed.

My GI's think I have CD vs. UC, based on my colonoscopy. But they're not certain because they haven't seen whether it's also in my small intestine. Seems like it's close to my rectum since I've been squirting out bright and dark red blood, past and present. Will be picking up cortifoam real soon.

Looking forward to the Cortifoam then! But not the $145 per can it costs.

My GI's don't know if I have colitis in my small intestine, but they definitely saw a lot of it in my large intestine, and in patterns resembling Crohn's. Can colonoscopes go up into the small intestine? I imagine endoscopes can't go past the stomach, but I don't know. I also had a barium follow-through, but I guess that didn't show inflammation in my small intestine.

Yeah I’d be interested in how it affects the nose too!

 

I’ve had a crazy outbreak of mouth ulcers once (I counted 27 at once!) but that happened very randomly and went away after a week.

 

Sometimes I think I’d love to watch up colonoscopy video, so I could really ‘see’ this disease. Gross, I know – but I think it would be interesting.

 

Wow those enemas are expensive!!! Mine were $30 AUS a bottle – which was expensive enough for me on my salary! Is that $145 for one bottle or two (mine came in pairs)? Do you get any of that money back?

Yes and you don’t get stuck with the prednisone side-effects which is brilliant!!

I haven't been able to sit correctly for about 2 years now...I'm one of the weird cases with little to no small bowel involvement but got it in the two ends (mouth to stomach and sigmoid to anus). The CD was originally spotted in the sigmoid...

And yup, like Pheobe, I have a mess load of ulcers in the mouth...they seem to heal, then new ones appear...kinda like the bum...fissures heal, then get new ones...trying to find the "one size fits all" approach to this DD is quite frustrating to both me and my docs...anyone else have these difficulties?