My husband said last night that he wished I had some other disease. When he saw the extreme look on my face, he quickly explained....It would be so much easier to say she has such and such type cancer. He then realized he dug himself a big hole....but I got where he was heading...it was actually a very empathetic statement that he just couldn't word well.
He saw my frustration on the 4th of July trying to explain that I could not eat something when that person has seen me eat something similar. He has watched me suffer the effort of trying to explain that not only is everyone different, but I am different every day. Then had other people expressing doubt that I actually had an illness. I am always walking the line between giving too much detail and making this look too easy.
My husband and I tease each other a lot, but I just need to say that he is so special to me. He may not have the right words, but he is so understanding and comforting when i feel ill. He gets all the little weird things that change every day. I feel very lucky and wanted to saw it "out loud" to those who appreciate these things.