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What does remission mean for you

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Crohn's Disease
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Posted 9/2/2009 9:27 PM (GMT 0)
This may sound like a stupid question, but I'm trying to prepare myself for possibilities in the future. I have read a few posts on here where people say they are in remission, but they still cannot eat certain foods, or if they eat a certain food they pay for it later. Knock on wood, I'm on Remicade and am currently in remission, and I have no symptoms at all, even with a variety of foods and lots of raw veggies. I am getting the feeling that it may not be that way in the future, even if I'm in "remission".

What exactly does remission mean for you? Does it mean no symptoms at all, or is that very unlikely as the disease progresses?
Posted 9/2/2009 9:32 PM (GMT 0)
My husband is like you for the moment - he can pretty much eat most things without any problems (other than his nut allergy of course). I too think that as this disease ravages your body, that will change, but I hope it won't get too bad. I guess we'll find out!

PV
Posted 9/2/2009 9:38 PM (GMT 0)
I'm not too sure.  My daughter still has tummy aches at times even with the Remicade.  Although she has normal stools and her energy level is much better.  So I am quite happy.  We have noticed that she cannot eat hot dogs.  We also stay away from soft drinks.  she usually only drinks water, juice and gatorade.  We also stay away from seeds, strawberries, tomatoes, nuts and corn and try to avoid some spices too.  However, she is eating salad which consists of lettuce and cucumbers (she is anything but a good eater) and she does well with these.

Posted 9/2/2009 9:58 PM (GMT 0)
For me it is not been so tired and not having constant pain & D. I still have bouts of both even though I consider myself in remission. But it means the crohns is under control enough for me to get on with my life
Posted 9/2/2009 10:07 PM (GMT 0)
TNvolutneer- I cant eat hog dogs either.

Remission for me means I can eat anything and poop once a day like normal people. :-)
It also means I'm pain free joint wise.
Posted 9/2/2009 10:09 PM (GMT 0)
My definition of remission is no D, no pain, and not being as tired. Unfortunately, I haven't had more than about 3 months of remission so far. But I've felt much better since I started Remicade, so I think I'm on the right track.
Posted 9/2/2009 10:21 PM (GMT 0)
I have had Crohn's for a little over 7 years - and about 6 of those years altogether have been spent in remission (my Crohn's is by no means mild though, classed as severe but remissive, when I flare I go downhill very quickly I can go from being OK to needing hospitalisation within a week, luckily for now we know how to treat it and it works very well and the flares are shortlived)

For me, remission means I am generally totally well in every aspect except I have diarrhoea every morning (controlled with codeine, once I've had my dose in the morning I won't usually go again until the following morning, however if I got out in the evening I will take another dose for security as food or alcohol in the evening when the first dose of codeine is wearing off will mean diarrhoea - once happened in a que for a club and I'm never chancing that again) we think the diarrhoea is due to some permanent damage somewhere, I also can't absorb much fat and too much fibre will give me cramps so I eat a lowfat/low fibre diet. I can still have a bad day if I'm stressed or eat something I shouldn't. But otherwise I'm fitter and stronger than a lot of 'normal' people I know, in fact many people are shocked when they find out I have Crohn's. I feel so lucky that for now it is controllable, I do fear for the day when it is not but for now I enjoy my remission periods as much as I can, if I flare again and can't get it back under control I want to know that I lived all I could while I could!

Posted 9/3/2009 2:08 AM (GMT 0)
Remission means no symptoms of disease (which I've never experianced in the entire 18 yrs of having this DD), feeling as you did before getting sick.


:)
Posted 9/3/2009 2:41 AM (GMT 0)
Hmmm...I considered myself in remission the last 6 years. I was on no meds, and would only have diarrhea once in a day, and only 2-3 days/week. Too much alcohol always made it worse the next day. But other than that, I could eat popcorn and all those things I can't have now.
Posted 9/3/2009 2:56 AM (GMT 0)
Remission to means a TOTAL absence of ANY symptoms. HOWEVER, there are certain foods I can ONLY eat in MODERATION. Raw veggies are an example but it isn't because of the disease, its because of the high grade partial obstruction at the site of my old resection. No matter how well I chew them they just haven't digested enough to move comfortbly thru that partical obstruction if I get carried away and eat too much of them.

And I do so LOVE raw CELERY especially, and also broccoli and cauliflour. *sigh* And sweet corn on the cob.

My version of the PERFECT meal: Medium rare steak w/nothing but salt; buttery, salted sweet corn on the cob; chilled cucumber and tomato slices. Drool. IF I have any room left for dessert: chilled watermelon cubes, blueberries and strawberries. Drool.

Imuran and Pentasa have kept me in remission and/or symptomatic remission for the past 11 years. God is good.

Posted 9/3/2009 3:42 AM (GMT 0)
For me, remission was pretty much completely forgetting I had the disease; ate just about everything I wanted, in moderation (e.g. drinking, spicy foods, etc.), and really didn't have any symptoms except some fatigue and joint pain sometimes. However, since my first flare my poo was never the same: usually brickish in color (probably from the Asacol) and smellier (prompting comments from others about my bathroom use!).

Post Edited (GDen) : 9/2/2009 9:46:09 PM (GMT-6)

Posted 9/3/2009 3:50 AM (GMT 0)
I have my life back! I can eat what I want, I am able to go to the gym, and travel!
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