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Pain only at night questions......

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Crohn's Disease
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Posted 9/3/2009 4:51 AM (GMT 0)
Recently I've been fighting off a flare for the life of me.  Been going on months now and a few hospital trips but of course I'm one of the lucky ones I can be at my worst and tests all show up perfectly fine.

Lately I've noticed I feel fine during the days, as fine as I can anyways...but then at night when I try and go to bed BAM!! the pain hits me like a ton of bricks.  Has anyone experienced this? I'll feel fine til I lay down and it seems the action of laying down seems to really bother me and trigger off something.  Then of course I just end up popping painkillers and even those seem to be waring off in effectiveness on me.  Does anyone have any ideas if this might be something other then the crohns or maybe just the effects of eating during the day catching up at night, but why only when I lay down?  I now end up tossing and turning all night, groaning in pain and probably worrying my husband and lacking major sleep now cause of it.  Swear I am going to start fearing even going to bed soon.  Also could it be because of constipation? I know my body seems to have troubles lately getting it all out even though I feel I am going fine(any suggestions there? more fibre perhaps?)

Had a baby in March, on Imuran (never really had problems with it, been on it long enough to know its not an effect of that) and been fighting this flare since May.  Monthly b12 shots.

Any advice or anything would be very welcome!

Posted 9/3/2009 6:18 AM (GMT 0)
Where is the pain? In your stomach? Do you take anything for inflammation...because Imuran will only suppress your immune system..but it won't help with inflammation..what type of diet are you on? For me..after every baby i had..my disease got worse..but that is just me..do you have diarrhea? Or just constipation? If its your stomach..does it hurt on a particular side? You might be backed up...and maybe you do need some fiber to be regular..you could try to eat fiber one..like one cereal bar or just one bowl of cereal..and drink alot of water..maybe avoid caffeine..fried foods, milk products, red meat, eat more yogurt with active cultures..have you tried pro-biotics? You can buy them everywhere..they are not always exspensive..get ones that need to be refrigerated...i like dan-active pro-biotic drink...i think it helps...you should also see your GI to try to figure out why you feel so bad..i wouldn't wait much longer...hope you feel better
Posted 9/3/2009 1:06 PM (GMT 0)
Are you eating right before you go to bed? Because if you are it could be causing acid reflux or something like. You should avoid eating anything for at least 2 hours before you go to bed. As for the constipation, I suffer with that too. I take stool softners everynight to keep things softer and easier to pass. Hope that helps.

Hugs
Gail*Naners*
Posted 9/3/2009 1:24 PM (GMT 0)
Yeah I realized after I wrote I never said where the pain was. For my Crohns I am always a lefty when it comes to pain, lower left side of my stomach. Which I know is a bit unusual since it's my ileum that carries the crohns and thats on the right, and most get central or right sided pain but I've always been left sided, same with my dad. Nah, I don't eat before bed, maybe a small snack but lately I haven't had much appetite so it usually ends with dinner. I've tried probiotics but found I can't stand thier aftertaste that they have, something about the cultures I guess and the taste just really turns me off, though normal yogourt I like.
I just got off a round of prednisone too (and cipro/flagyl before that), along with the Imuran to get things in control but the pain was even before I got off the pred. Saw my GI just last month, he knows I've been on the rocks a bit but just wants to wait it out for a little (which really meant 'come see me again in Dec')
The other day I had a pretty good round of D which I guess was good since two days before a doctor I saw said I was really plugged up in there (which like I said almost surprised me since I THOUGHT/felt like I was going fine, but apparently am not). I'm finding lately yeah, I seem to get pretty good rounds of getting 'plugged up' it seems even though I never notice being plugged or not going proper. I have Fibre one bars, starting to think I should do a daily round of the cereal now too.
Tried ex-lax to unclog, found it doesn't do a darn thing, though I should probably try dulcolax instead, soften it up. I know my mom uses it too.
Posted 9/3/2009 8:41 PM (GMT 0)
i am new at this so bare with me, i have not done this before - chat live about my condition. i too have pain at nite, but there is so much to my history that i wouldn't know where to start. i had colitis and in 98 and they had to take my colon.
this year i was diagnoised with chrons. i have good days and most of the time i am afraid to eat - i feel alone in this mess of a disease, i think what is now happening to me is that i may be on the path of loosing the small piece that i have left of my large bowl. i have a j pouch inside for several yrs now, couldn't have children - scare tissue and hydrosalphix [fluid in tubes] i feel for you and hope things get better. Everyone else too that is in this mess. i am finding that there are soo many complications and differences in this disease - it make it hard to treat and sometimes the doctors and specialists don't really even know - its almost like playing russian roulet or something like that, - they say "well here, let's try this, maybe this will work, see you in a month." its frustrating!! pls excuse my spelling =] GOOD LUCK!
Posted 9/3/2009 9:13 PM (GMT 0)
The usual cause of C followed by D is a stricture or partial blockage. This can result in pain, although it usually does not wait until you lie down. Extra fiber won't help a stricture and may cause problems. Did this problem start after stopping the pred? It might help to get a very small course of pred again. If I had to guess, I would say that laying down may stretch the stricture or compress the material in the blocked section causing pressure and pain.
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