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Crohn's Disease
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Posted 9/22/2009 9:14 PM (GMT 0)
I got a message from my GI's office saying that my blood work results came back normal. What on earth does this mean for me then? I am dead tired all the time it seems like, and I have no idea why...
Does this happen to any of you often? I just want to be able to stay awake long enough to get my homework done and spend time with my boyfriend. We went to the midnight launch of Halo ODST, I was super excited, and then I just collapsed when we got home. We were really looking forward to this, just an example anyway.
Posted 9/23/2009 1:43 PM (GMT 0)
I am always really exhausted too and my bloodwork comes back borderline anemic all the time, but the doctors are never concerned. I just had my Vit D checked, don't know the results yet, but maybe that is something you need to get checked out. Hugs!
Posted 9/23/2009 2:33 PM (GMT 0)
It might be that your food is going through you so fast that you just are absorbing all the nutrients that you need, and thus you are not getting all your vitamins. Maybe you could add some supplements or an Ensure into the mix just to see if it makes any difference. I know I seem to be tired a lot too. I know I have posted about B6 before, but when I added that into my daily mix it made a difference. It took about a month, but it did help.
Posted 9/23/2009 2:34 PM (GMT 0)
The B6 I take is in addition to the B12 shots I take
Posted 9/24/2009 12:14 AM (GMT 0)
Hi LMills,

This exact problem is my constant problem! I am in the same state at the moment and I am basically bed ridden. I was so sick of trusting the doctors and in the past few weeks have been gathering all my own medical paperwork including blood results and when I looked at them EVERYTHING was on the lowest level but yet the doctors say its all fine.

I feel too that a big problem for me is my blood pressure normally being 85/40 - 90-50 max and you add low iron and everything else, it makes me feel like the walking (or lying) dead.

The other thing is that when you look at the history on the blood results of past dates when you know you felt like a better person all the levels are higher so even though I am low but in the "safe" zone at the moment I know my body is not functioning well enough and im on a mission to fix it, so i will keep you posted on how I go.
Posted 9/24/2009 12:43 AM (GMT 0)
Earlier this year I could barely drag myself out of bed in the morning (and some days I didn't). I was dead tired all the time, could have slept all day, and was barely keeping my head above water at school. Then at night I would toss and turn. When I went to the doctor, they said it was depression and started me on anti-depressants. After about a month, I started to notice a real difference and was able to get through the day more easily. Now I'm still tired more often than I'd like, but I work a lot and don't sleep a lot, so it's just normal tiredness and not the debilitating issue it was six months ago.
Posted 9/24/2009 2:41 AM (GMT 0)
What is everyone's hemoglobin? Mine is usually around 10.3.
Posted 9/24/2009 3:15 AM (GMT 0)
my bloodwork came back fine for the first time in a long time i'm happy but like you I am still tired. If I don't get some down time at least 20 minutes in the middle of the day I can't function.
Posted 9/24/2009 3:17 AM (GMT 0)
That's the thing...If I let myself rest for 'just a minute' then I end up sleeping from 2-4 hours and wake up even groggier. I'll see about the vitamin B. My aunt used to have this problem really badly so she started eating spinach as often as she could. The difference she felt was pretty good so we'll see. I can't eat too much in the way of vegetables at a time, but spinach is a softer leave and all right in moderation.
Posted 9/24/2009 2:17 PM (GMT 0)
It sounds like fatigue is a major problem with many of us. I'm in a wonderful remission right now but still can't seem to function. I'm just so tired of being tired all the time. I'm wondering if my fatigue is even related to Crohn's at all. I just wish I knew why my body is all messed up.
Posted 9/24/2009 2:20 PM (GMT 0)
I have the same issue. My GI says considering the drugs I am on my bloodwork is fine. The things that always say they are high or low are chalked up to imuran. I do ok until about three and then I am done.
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