I haven't been online for so long. been very sick. albumin dopped to 1 and immune system crashed. it is so bad I can't even think about
going to the hospital, with my albumin so low I am another disease or illness waiting to happen.they are trying to get a mobile unit out here to take my blood. I lost 9 pounds in 4 days and about
60 pounds in just a few short months. I am not getting any nutrition at all. my feces have seperated, diareaeah no color and then a thick oil all over the top. I've never seen that before. I am full of fluid in the 3rd space about
30 pounds worth. now imagine being nearly being 6 feet tall and only weighing 110 pounds and losing faster and faster everyday. I have so many other illnesses to. to doctors have their hands tied. I can't have any surgery even though I need it. I m so tired and fatiquied. I have alot of pain in my joints and fluid I can not walk. I have a care giver she lifts me, I got a lift chair and hopefully today my husband is bringing home a scooter for me. so I will have the independence of having my legs back. I have kids and grandkidss. I keep telling my kids that I can't be around any of them right now as one bad cell gets to me it could be all over for me. but see I was supposed to die 4 years ago within 3 months and it didn't happen, now my daughter thinks I am crying wolf. I have doctors afraid that I will pass away from congenital heart failure. eapecially since I also have mitral valve prolaspe. running fever. have runs so bad, hemmeroids. you can only imagine. I also have a fungus in my lungs called aspergillosis and no cure for it either. I also have factor 5 laiden, blood clot disorder and much more. this is the lowest my albumin has ever been and to be honest I have alot of fear. even though God says to lay our problems and our sicknesses on him and he will help us. I do. I have a great care giver who prays over me every morning and every evening. needless to say I am scared to death and am looking for not sympathy but people that have made it through the fire so to speak. Pep talk. Ideas. Anyother docs I should see. I can't be treated for anything because it will only make things worse. the docs say there is nother they can do. is there anyone out thee that has heard of so much and was able to help. . the lasix don't work as fast as I wish my left arm is so tight and my legs are very full and tight. any advice, prayers. thoughts???I am desperate to hear from other crohnnies and people that have much what I have. I look forward to hearing from you. anxiety is something and depression I have been dealing with to. thanks for listening. sorry so long. its been so long since I've been on yahoo groups and I really need a support group who can give me advice and lift me up and give me hope. thanks, Donna - camey0777
2. No discussion of medical marijuana use.
Post Edited By Moderator (Nanners) : 10/5/2009 12:34:09 PM (GMT-6)