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Crohn's Disease
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Posted 10/5/2009 2:43 PM (GMT 0)
I am in a bad pattern of flaring, everytime I think I am healthy, I get sick again.

I eat well, exercise daily and take all my meds.  I am thinking I need to do more.

I have inconsitistanly tried different supplements and natural remedies, but i have a hard time figuring out what is working and deciding which ones to try. 

What supplements do you take that you feel make the most difference (i know it is prob different for everyone) 

I have tried ginger pills and aloe vera juice...any different suggestions???

Thank you so much...

 

Posted 10/5/2009 8:39 PM (GMT 0)
Probiotics are the single most useful supplement for your gut - if you use the right ones. Probiotics with a good record include Culturelle, Align and VSL#3. There are some newer food products that include probiotics. A Finnish dairy multinational called Valio (Unilever has some relationship) has started selling a spread that has the same bacteria as Culturelle. For a story about the bacteria, see: Science Daily
and for a blurb about Valio/Unilever and the new food, see: http://asiakaslehti.com/foodsandfunctionals/node/3
Posted 10/5/2009 9:16 PM (GMT 0)
I agree with what Keeper says about probiotics. (Good links by the way, thanks.)  My daughter takes lots of them, but still she is currently flaring with lots of D, cramps in her sides, and tummy pain right in the center.  Wish I knew what to do to knock this flare out (other than putting her on SCD or enternal nutrition which she refuses to cooperate with.)  I have been reading posts on here about Metamucil, so we are "trying" this except that she links it's gross so we're having trouble with that here too. Argh.
Posted 10/5/2009 11:12 PM (GMT 0)
I haven't found any supplements that make a noticeable difference, including probiotics. I'm only gonna be taking calcium because my GE says I should because of pred.
Posted 10/6/2009 5:18 AM (GMT 0)
Have youtried fresh ginger or just pills? I'd think fresh would have more of a beneficial impact so whenpossible try the closets to "real" as possible when it comes to things you can get in pill form like ginger, garlic, ect....

below in my sig is a list of all that I use, with some good results, not full remission for me but much better than before I started taking the supplements listed in my sig below.

:)
Posted 10/6/2009 2:04 PM (GMT 0)
I am finding some success with taking extra Vitamin D. I am now taking 1400 i.u. a day, and I have noticed some relief with my joint pain, and fatigue.
Posted 10/6/2009 2:15 PM (GMT 0)
Nanners, That's great news. I just bumped up my daughter's D3 intake yesterday. How long before you noticed that it seems to help? Thanks.

___________________

please adjust your sig to 10 lines total.

Post Edited By Moderator (MMMNAVY) : 10/6/2009 8:59:50 AM (GMT-6)

Posted 10/6/2009 2:46 PM (GMT 0)
Mooby, I take perscription vit d 50,000 units a week and it took several weeks.

pb can you share the brand names on those? and which ones need to be in the fridge?

Posted 10/6/2009 3:31 PM (GMT 0)
Mooby I have been taking it about 2 weeks now, and I am just starting to notice some relief. I am not constantly having to take as many naps as I was. Many times as soon as I got home from work, I would pass out on the couch. Don't feel quite as exhausted as I did. I won't lie I am still tired, but not quite as bad as I was.

Hugs
Gail*Nanners*
Posted 10/6/2009 5:46 PM (GMT 0)
Poohbear...noticed you were taking nexium, a ppi...this can lead along with crohn's to a poor absorption of calcium...if you are interested...there are supplements that include calcium with vitamin D...I personally like viactiv, but there are others out there too...It seems to help, but then again, along with the long time use of ppi's I've also been on the steroids for a long period of time too...hope you find something that works :)
Posted 10/6/2009 5:59 PM (GMT 0)
Sure MMM, the omegas, vitamins A and C-Calcium Ascorbate and bee propolis are all puritans pride brand (online store) and I use Prodiem stool bulker fibre supplements, and the probiotic I use now are Sangsters brand (from my local Sangsters store) called ProBio TX-11, I used to use Primadophilus Reuteri which was excellent but the price jumped so I switched and find the Sangsters brand to be equally beneficial but priced better(and I get more for the money).


:)
Posted 10/6/2009 9:09 PM (GMT 0)
Along with some of the other things listed above I found a few years ago that a B6 supplement made a difference in my energy level. It took about a month or so, but I didn't NEED a nap every day. I try to find one that is at least 100mg, 200mg is better, but I can't always find it, brand doesn't seem to matter. I don't take it as a B complex, I take it as a straight B6. I also have B12 shots.
Posted 10/7/2009 2:42 PM (GMT 0)
I was always afraid of taking too much vit d. I use to take my multi that was 400 iu then two more just d at 400 iu each but stopped because I didnt want to OD on it. I have an issue with standing for any period of time. Like in line at the store, I have to sit down. I also take super b complex with my multi, but now I wonder if the extra vit d would help with my endurance. Any suggestions?
Posted 10/7/2009 11:55 PM (GMT 0)
Where are you all geting the Prodeium from? Is it in the U.S.?
Posted 10/8/2009 12:38 AM (GMT 0)

Hi everyone,

I take flax seed oil, I'm up to 5,000 iu of Vitamin D, as well as a multivitamin.  Probiotics are especially helpful, you may find this paper on DMSO and Melatonin helpful as well.  When I was flaring I used the Melatonin (at night) and would use the DMSO for pain relief:  http://www.krysalis.net/crohn.htm (it helped me quite a bit) and here is more info on vitamin D:  http://www.vitamindcouncil.org/

I hope this helps you... God bless.

Posted 10/8/2009 2:45 AM (GMT 0)
I take antioxidant supplements in the form of a strip, you put it on the inside of your cheek and it dissolves and goes into your blood stream so it doesn't upset your stomach and you don't have to worry about it not being absorbed in the GI tract. 

I am on the SCD diet and make yogurt.  Wondering if I need additional probiotics....

Posted 10/8/2009 2:56 AM (GMT 0)
dinkydee I'm a firm believer in probiotics daily and indefinitely (as well as all the other naturals I take and things listed in my sig).

:)
Posted 9/7/2014 3:12 AM (GMT 0)
Spam alert! Mods, please delete the two posts above.

Dee, I'll give credit where credit is due: You were able to revive a thread that had been dead for nearly five years! It's a miracle!!!1!!!!11!
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