has anyone??

huntersmom

Regular Member

Joined : May 2009

Posts : 50

Posted 3/10/2010 3:09 PM (GMT 0)

Has anyone not responded to prednisone? I have never really responded to it even at 40 mgs and I can't go higher than that cause I can't tolerate the side effects. I am very frustrated cause I feel like I am not getting any better but getting worse and sometimes a response from the GI takes forever. I was just wondering if anyone else has had a response to prednisone like that and if anything else has worked. I am getting urgency all day long and bleeding and now on top of all that I have external hemmies and I feel like my insides wanna fall out and my butt is killing me.

Nanners

Elite Member

Joined : Apr 2005

Posts : 14999

Posted 3/10/2010 3:11 PM (GMT 0)

Have you ever tried Entocort? Its a steroid also, but has less systemic side effects. Just a thought! Hugs~

sr5599

Veteran Member

Joined : Aug 2007

Posts : 1202

Posted 3/10/2010 5:29 PM (GMT 0)

I get hives with prednisone, so I never got to see if I responded or not. I take methylprednisolone when I need oral steroids.

lilcrohnieUK

Regular Member

Joined : Dec 2007

Posts : 414

Posted 3/10/2010 7:00 PM (GMT 0)

I don't respond to steroids and have horrific side-effects from them so I'm not allowed to take them anymore - which is fine by me as I don't see the point in taking a treatment that doesn't work!

I was originally on Entocort back in the day when i first got diagnosed and then moved to pred as my GI said that entocort only works in the small bowel which is one of the reasons its less side-effecty but means it doesn't help the rest of the intestines as much as pred does and so is only really suitable for people who have Crohn's just in the small intestine, mines everywhere. Either way neither helped me so thats why I ended up on methotrexate early on after diagnosis.

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