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Crohn's Disease
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Posted 4/7/2010 9:19 AM (GMT 0)
Ever since I got sick (some 8,9 years ago) at one point or another almost everyone I know has tried to give me advice on how I should manage my disease.
Most of the advices were pure quack (bioenergy, homeopathy, DNA resequencing through theta healing ... etc).
How do you deal with people who try to "help" you like that? Do you just nod and listen (and probably ignore) or try to educate them?
For example, today I was told, by a good family friend that I will most certainly DIE in the next 10 years if I don't change the way I eat and what medicine I take.
According to him, I should be on a veggie diet and not take steroids and 6-MP even if the doctors tell me.
Now I know he's just trying to help (the best way he can smilewinkgrin ), but it really annoys me.
Posted 4/7/2010 1:29 PM (GMT 0)
I just smile and act like I am listening and then thank them for their concern, and walk away. It is annoying, I agree 100%. Hugs!
Posted 4/7/2010 1:51 PM (GMT 0)
I know what you mean. my boy is constantly told how small and thin he is. that he should put on some weight. HE KNOWS!!! but he just smiles and lets it slide

Posted 4/7/2010 1:51 PM (GMT 0)
Oh my so much of the time! Plus I love it when people give me tips on how to lose weight too. That way I can take care of my disease and weight problem all at the same time. I have to admit while I generally slap a smile on my face. I have also said "When did you graduated from medical school?"
Posted 4/7/2010 5:35 PM (GMT 0)
When my MIL and a friend of hers inform me of what I should be eating (chicken only) and tell me how much this or that helps with their diverticulitis, I just smile. They can't get out of their heads that the way Crohn's was treated 25 years ago is not the way it is treated today or that diverticulitis is not the same thing as Crohn's.
Posted 4/8/2010 6:59 AM (GMT 0)
There are lots of well meaning morons in this world. I have emergency medical training thats part of my job. I have never treated a seizure patient (atleast 6 cases) without someone telling me that I need to put something in the patients mouth so they won't bite their tongue . That unforgetable piece of medical treatment went out after the 2nd world war.
Posted 4/8/2010 11:30 PM (GMT 0)
Ya gotta just love it eh
i get told eat eat no matter what ppl make when im invited for dinner
dang they should know by now what i dont/cant eat
they just dont listen or understand i guess


lol i actually had my daughter thinking putting a tongue depressor in mouth would help shes 17 but listens to ppl that think they know it all
GEESH ask me..
huggs
lyn
Posted 4/9/2010 6:25 AM (GMT 0)
OT again. The worst first aid case I had was when I was the trainer for my 17 year old son's soccer team. My son was hit violently to the ground and when I got to him he tells me he's paralized from the waist down. What a nightmare! So I'm trying my best to be professional and continue to treat my son, hoping for the best and treating for the worst and all I can hear is some adult from the other team, critisizing what I'm doing and complaining that I shouldn't be treating this child without his parents permission. I continue doing my job and this idiots getting closer and closer and louder and louder when a parent from my team informs him that I'm trained and the childs parent and that he'd better be gone by the time I finish. (I'm 6'5" and 220lbs) I understand He left after I gave him a look that confirmed he'd better leave real soon. FYI by the time the ambulance arrived my son's paralysis was slowly leaving and by the time we got to the hospital it was totally gone.
Posted 4/12/2010 7:19 PM (GMT 0)
People LOVE to tell you what you "should" be doing/eating/medicine you should be taking/how their neighbor's grandson's best friend had a similar problem and you should try what he tried/etc etc.  I think people mean well but it's annoying.  And it undermines the severity of what you are actually going through.  It's your body and your pain and your Crohn's and it's not like anyone else's.  So it would be nice if people could keep their uninformed opinions to themselves but they can't so my approach is just to smile and nod and let my mind wander while they are blathering on.  It's the same when people comment on my weight.  Even before I got sick I would NEVER have the NERVE to comment on someone else's weight or appearance, except as a compliment!  Apparently this is not the case with everyone.  So there is a lot we just have to suck up and bite our tongues.

I try to only discuss my diet/illness/etc with people who "get it" but at the same time I am trying to be more open so more people understand what I go through and it's not something I keep to myself as much.  It's a fine line.  You know what they say about people and opinions. :)  Every once in a while you can learn something new from someone who knows something you didn't, so i guess it's worth it in the end, but most people will drive you nuts.  I usually just smile, nod and not say anything.  When they are done with whatever nonsense they are carrying on about I either change the subject or politely excuse myself from the situation. 

Good luck!! :)

 

Posted 4/12/2010 8:35 PM (GMT 0)
I just love the "others" stories. about how someone your friends or family tell you about with crohns. How he/she got better by eating certain foods or drinking some kind of juices. This is 3rd party hearsay. People are always different in how they respond to medicine. I also hate how other people will come to you with a new drug to try. Or the best yet, "have you seen that crohns commercial on TV". Other people just don't understand what we go through and how we feel inside(mentally).
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