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Crohn's Disease
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Posted 5/12/2010 8:02 AM (GMT 0)
Hi everyone.  I have been taking Asacol (6 / day) for 20 years.  Over the last two years (since retirement) I have felt better and had them sporadically.  Now I've stopped completely - but I wonder whether the Asacol was working particularly to keep my blood pressure down - as, recently, it has gone up significantly.  Is this a side-effec of stopping Asacol comletely.  Any answers / experiences?
Posted 5/12/2010 12:31 PM (GMT 0)
I can't say anything about the blood pressure. But when I was just starting college, I felt fine and even believed that I didn't have crohn's. I would take my asacol when I felt bad, but not 3x/day everyday. I felt fine and continued to live life like a normal college student, eating what I wanted and drinking what I wanted. By the time I graduated and got back to seeing a doctor, my mild crohn's had turned into major. Even though I felt ok, the disease had multiplied and moved into my joints.
Why are you wanting to stop Asacol? Staying on a maintenance drug is better than ending up in the hospital or thinking you are fine when your insides are getting worse.
You probably feel better due to your retirement and getting to finally relax. Don't forget about this disease because it will not go away and retire. Good luck.
Posted 5/12/2010 1:02 PM (GMT 0)
Papillon1004 I too question why you are stopping the Asacol. I personally believe and have learned a very hard lesson on what not taking meds with this disease can do to a person. There is no cure for our disease. Even when you think all is well, Crohns is always in there doing its damage on a microscopic level. I ended up having to have emergency surgery due to complete obstruction because I didn't think I needed meds either. I too am maintained solely on Asacol and it has kept me in remission for the past 5 years. Please do not ignore your Crohns. I think the Asacol has been keeping you in remission, get back on it and stay on it so that you don't end up getting sicker, and then having to go on even more heavier meds or wind up in the operating room.

Good luck!
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