Medicine Issues, Doctor Issues, Anxiety Issues

Im only 4 months into being diagnosed with Crohn's and already fed up, for those of you who have had this for years, I cant even imagine.

So my visit to my GI initially was pain in my upper left quadrant, under my ribs. When they did my colonscopy, they actually found Crohns in the opposite area, lower right quadrant, in my illeum. I had never had pain or discomfort here, so was surprised. I was put on Pentasa, then Asacol HD, and now Entocort. When I take the medicines, it makes this pain in my upper left quadrant, very much more apparent. When I stop, I get the pain now in my lower right, which would make sense, in my terminal illeum. So it is a constant struggle. Take the medicine and feel awful in one area, or not take the medicine and feel awful in the other. I feel as if the pain in my upper left is not Crohns, but rather, any of these medicines I have taken so far is irritating something along my tract. Be it my pancreas, stomach, spleen (anything else in that area?) as it doesnt feel like a typical Crohns pain. Since, Ive had a CT scan done, and they called me and said it looks normal, whatever that means. I havent had any blood tests since, and wondering if another test could offer insight (Pill cam?)

I hate my GI. It takes forever to get in to see him. When I call and complain all he does is switch my medicine. I dont want to call him again. Im currently on Entocort, my third medicine, and I feel like if I call and complain, hes going to switch me to another medicine, without seeing me, and this next medicine will do the same exact thing the first three have. Make me feel better in one area, worse in another. Has anyone else had issues similar to this? Has anyone else gone through this many medicines in as fast a time?

I am very much considering switching GI's, but have no idea who would be a good doctor to go to. Is anyone here in the Cincinnati area and can recommend a good GI?

Thanks for listening.

about the meds, doctors often start their patients on low-grade medicines and then build up, gradually, to stronger meds if their patients seem to need them. That may well be what is happening with you.

However, you are a newly diagnosed patient, and I think the newly-diagnosed (and all patients, really) need good communication from their doctors, as well as understanding and sympathetic support. It sounds as if you are not getting that from your current doctor, so maybe a change would be a good idea.

I can't recommend anybody for you, as I'm in a different country, but maybe one of the other members will be able to help.

Ivy.

I also have this upper left quadrant pain almost all the time. The worse the pain gets, I start running to the bathroom more and getting more mucus and blood.

That said, my current GI gave me a prescription for something called Neurontin, which works specifically on nerve-related pain. His theory was that I get inflammation in the turn right below the spleen that is pressing on nerves. It does help - it's not total relief, but it's better than nothing, and I really dislike taking the narcotic painkillers unless I absolutely have to.

Just a thought. :)

Try the CCFA website to see if they have a dr in your area. It is CCFA.org