I would also say that the NACC site is a good site for information, took a while for me to navigate around the pages but all the info is there(some very good information sheets that can be printed out informing school of the condition, how the school can help, problems the child may have etc)It also runs local support groups and there are people there at the end of a phone if they just want to chat. Also the cicra sit which is specifically more geared to children and their families and as already mentioned, dragonpack ibders.
My son's consultant actively encouraged me to research online and to join NACC(done both :) )and although initially it is scary I think that it is more to do with the shock of the diagnosis and you believe that your child no longer has a life. There was a fair few nights where I sat and cried. but now, 8 months down the line I am better educated (thanks everyone 
) son is still the same boy that he was and things have somewhat settled into a routine. Yes he has the medication, blood tests, hospital visits, and sometimes a day in bed cause he really isn't feeling too good but by in large life goes on.