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Crohn's Disease
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Posted 9/4/2010 10:44 AM (GMT 0)
Last Saturday evening I started getting abdominal pain, gas, nausea, and vomiting. By Tuesday it was so severe I left work and went to the ER. They did CT scan and found nothing. They sent me home as I had dr appt the next day. Saw the Phys Asst the next day at dr ofc. They did ultrasound scan of my gall bladder and it came back normal. Now onto the HIDA scan to show function of gall bladder. If it is not gall bladder Phys Asst said I could have partial bowel obstruction, but that it should have shown on CT scan. I am at my wits end. Eating nothing but Ensure, banannas, and hot tea with honey. Otherwise, I get sick and vomit. This is so similar to Crohn's pain that I had 7 years ago that drove me to dr to find out what was wrong. Back then, after a million tests and a colonoscopy they said I had Crohn's Disease. The difference this time is that I am on Cimzia and just had a colonoscopy in May that showed I only have mild inflammation. Dr ofc offered me pain meds and some medicine that stops abdominal cramping. I think what I have going on is more than abdominal cramping. I have never vomited due to abdominal cramps before. Sometimes it is so frustrating that even with a diagnosed disease and two previous perforations I still cannot get the dr's to listen to me. I want to know where and how severe my pain is. I do not want to mask it. Maybe it will spontaneously resolve.   
Posted 9/4/2010 11:41 AM (GMT 0)
I've had numerous partial obstructions that did not show on CT. My GI goes by my symptoms and said maybe I caught it early enough that it didn't show on CT. Most of my obstructions do go away on their own, so maybe by being careful, you can get past this. I would suggest having a few days of just liquids to see if that helps your pain. Just gradually add foods after a couple days, being careful what you eat.

I went through many partial obstructions (the pain is very distinct to me so I know what the pain means) and my doctor didn't believe that I was in as much pain as I was, but after having more obstructions that did show on tests, she started believing me when I said I felt I was getting obstructed. Over time she has learned that I do not complain about pain unless it's intense...but i know how frustrating it is to be told "you're fine." It's very frustrating because I don't always show that I'm in pain, and I don't always look sick, so they think I'm exaggerating the amount of pain I'm in. For quite some time, they made me feel like it was all in my head. It's sad that doctors don't believe us, when we have a crohn's diagnosis. Hang in there, and I hope things get better for you.
Posted 9/5/2010 4:18 PM (GMT 0)
Monkiray- thank you for your response. Sometimes I feel like it is all in my head. Your story lets me know I am not alone. I have been keeping track of what my symptoms are based on what I eat. I noticed I can have canned fruits and veggies, but anything with fat in it bothers me. I have eaten lowfat lactaid cottage cheese and canned fruit without any problems. Chicken broth with canned peas and carrots, also boiled potatoes with the skin and with fat free yogurt...no problems. I add butter to the potatoes...major problems. Ramen noodles...major problems. Full fat yogurt...lots of pain and gurgling and D. Seems like fat is what is bothering me. Never had that before. I guess I will just keep eating what does not bother me and keep going for tests.  
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