endometriosis, chochole cyst, any advice

So I am proud to say and in full confidence that my Cd is in remission!!!!!!!!!   I still can't eat salad (lettuce) tomato's or anything acid like that but still!!!!!!!

unfortunately it's not a happy ending for me. I've been dealing with endo. I had surgery back in June as I just came home from my honeymoon.  Sure enough I had endo stage 1. After the surgery I was given 2 options (since anything else I can't take because of the CD or because I suffer from migraines) 1 was to try and have a baby (a lot of endo cases goes into remission after having a baby because your not having a period for 9 months, right!!) or take Lupron for a year, wait another year and then try for a baby. After lots of research I decided Lupron isn't a drug for me (especially since I got crippling arthritis from remi and humira, could imagine what would happen with lupron) so Dh and I decided to try for a baby. Doc suggestion insemination to hurry the process...avoid anymore endo coming back. So we did  that 2 months after the surgery. It didn't work I got my period this week and ended up in the E.R. They found 2 chocolate cyst on my ovary. 1 of them has popped already. Now that my period has stop the pain hasn't and that worries me. Should I be? I am suppose to travel this weekend.. should I even consider!?  I read if the cyst is causing pain while not on your period it could be a sign of an emergency surgery. Does anyone have any advice or someone who has been through this?!

Thanks a million in advance.

Oh, yes I waited to see the gyno team at the hospital but they ended up getting pages for labour and no one had time for me. The hospital has been over packed this last week so they sent me home with an apt with MY gyno next week. I have a high tolerance for pain what crohn's patient doesn't right!! As long as I am not vomiting I will not go to the E.R... but I know I shouldn't push myself either. When do I know it's time?!?! Geez I feel like a kid all over again! lol  

wow no I haven't heard of this pill!!!!! Thank you thank you. I'm going to go do my research on it now and present it to the doc on Tuesday.
Yahhh I knew someone would say I should stay home, deep down i know i should stay home too. But it's for a wedding and you know how those go... they've already paid for the meals and all. I don't know.... how frustrating.

Well before all of this we wanted to wait another year for a baby with just being married and bought a house (with out planning, a good offer came and we jumped on it when we got back from our wedding/moon) but in the last 2 months of trying for a baby I've set myself up for one and got really excited with the whole thought and names and everything else that goes with it. Now the thought of not having one is making be depressed so I guess I got the urge with out really knowing it, Sort of speak.

thanks so much!! and I am sooooooo happy your in remission and not suffering!! :) thanks again!!

RA&CD132010 said...
aww I am already back :( :( Cerazette can not be taken if you have or have had ovary cyst :( it's always something with me. But I appreciate your info!!!! hope it helps someone in the future looking at this!!

I would still ask the doc about it.
I take lots of med that say that you cant take them if you liver is not up to speed but my doc still let me take them and just monitor the situation.

Thanks guys! Your right I decided to stay home, I am very sad once again a disease has run my life but it is what it is. And luckily I have amazing people in my life who understand.
I got to speak to my doctor today, not under the best circumstance as I was told  to page him at the hospital when really I should have just left a message at his office (well his secretary told me soo not my fault!) he  wants to take the watch and wait approach and told me to go ahead and do another insemination, He said the likelihood of the cyst disappearing is great if I can get pregnant. So this is what we'll do, if it doesn't work he'll do another u/s next month and see if it got bigger and cross that bridge then. In the mean time he suggest things for the pain (mostly things CD patience's can't take) but the pain is deal able it's not CD pains or horrible ENDO pains (like us CD patience's are use to, as long as I can keep water down I'm good to go basically lol) now the waiting game, oh joys!  

Yes I will def still mention the med, I will still need something to help after or if I never get pregnant. Thanks again :)  

Post Edited (RA&CD132010) : 10/1/2010 9:39:57 PM (GMT-6)

janicea said...
Chocolate cysts don't re-absorb. Maybe he thinks you have a regular cyst? Why don't you read up on them and ask your doc some hard questions, I don't mean to be super serious about this, but ruptured chocolate cysts are not good things. Make the doc answer ALL your questions about the risk of another rupture and how it affects the spread of endo. ((hugs))

Hi!! Yess I've been reading ever since I came home from the hospital. I did say 'chocolate cyst' but you know how it goes when they are code calling you (returning your call from an O.R thinking it was a real emergency) I have an apt with him before my next IUI is scheduled so I'll definitely be able to ask all my questions. I am worried and so is DH as I keep getting pains that come and go but sometimes it makes me double over. I am terrified of another eruption...I have so many questions!!! especially after reading today once an eruption happens it can cause major fertility issues because the liquids has gone EVERYWHERE!! ugh I don't why they release me from the hospital!! oh yah they needed my bed! =/ thanks for your post!! I really appreciate it I now know i am not crazy for worrying a little.