Posted 10/18/2010 7:30 PM (GMT 0)
I was taken off remicade because it gave me drug induced psoriasis. My GI at the time claimed she was no longer comfortable giving me the medicine and told me I needed to be switched to Humira despite the fact my dermatologist assured her that introducing a new biologic would not change the reactions. Well it didnt. Remicade was AMAZING for me...worked within days of my first infusion and kept me free of any CD symptoms despite some abdominal pain that I've had before CD onset. Well Humira caused terrible headaches that would eventually turn into migraines and turned my normally low blood pressure to way over what a typical 26 year old should have. I have not felt well since July when the Remicade wore off. Well my GI has taken a leave of absence and I insisted on a new doctor. He said he would pre-medicate me with steroids and put me back on remicade immediately. He also said he wasn't sure I had CD or UC after going through the 300 page chart I've accumulated in a year. My problems started after my appendix ruptured, I had an unusual symptom profile for either disease and according to the unreliable prometheus test I have a 0% percent chance of developing either disease. Immediately he told me he thought I may have an unusual auto immune "effect" and hes not convinced I have either disease. After seeing my 5 hospitalizations from "trying" other CD meds, he decided to order the infliximab antibody serum test before giving me my remicade back. It's been a week and the half (which I know is nothing for a usual chronie wait) but the wait is anxiety inducing because I've flown through the other drugs and he doesn't think Cimzia is a good option for me. Im just hoping I will be one of those lucky few who gets the Remicade back despite not having it in almost 6 months.