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Crohn's Disease
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Posted 11/16/2010 2:24 AM (GMT 0)
* shower and dress - done
* cat-related errand - done
* get as much stuff off the floor as I can
* make bed
* do some dishes

That's it for me - exhausted today.

Bonus: do some paperwork.

Has anyone heard from Choc? And Becky, how's work orientation going?
Posted 11/16/2010 5:34 AM (GMT 0)
Well still only monday night here, but my TLC is

Do my part of my performance review---well.

Do as little real work as possible so as not to get hot and sweaty

Because Remi load number 3 is at 7:30 am.

So I am working modified hours tonight so I can work a full shift and get the Remi on the way home.  Hey, it's only a 20 hour day.  But man, I just don't cope with them as well as I did when I was younger.  Getting old SUCKS!

Posted 11/16/2010 1:45 PM (GMT 0)
So far today I've:

let the dogs out
had snack and took pain meds

Waiting for call to schedule ct scan for night sweats post surgery. They are getting a lot better though.
Today, I want to rest up, watch tv, read, take a shower, do some beading, and get some fresh air.

My energy isn't that high today and not sure why. Every day post surgery is different.
Posted 11/16/2010 6:59 PM (GMT 0)
Today started off quite well, but am just completely fed up again. I don't know. I'm really not good at having a chronic illness. I resent it; I resent the disease itself and I resent the lack of care. I'm wondering if I would just do better by leaving HW; by forgetting about having Crohn's as much as I can forget about it. I'm never going to go into remission, never going to get decent care. I just have to live with the disease as it is. What's the point in thinking about it all the time? It's driving me up the bend.

Sorry for the whinge. Overall I have been better compared to recently. Just right now I'm fed up.

TLCs...

*write letter to doctor
*get a shower tonight, as I was too lazy to get it yesterday
*make dinner (steamed thai trout! Testing out the bamboo steamer for the first time...)

Later on this week, I must get off my arse and seriously look for an NHS dentist. I think I have a gum infection - at least I hope it's a gum infection rather than something wrong with the tooth itself. But I haven't been to a dentist for over 2 years, because I failed to find one when we moved here.

Also, look into more winter stuff for my car. If this winter is as unusually cold and snowy as last winter was, my car will be as miserable as me... :-/
Posted 11/16/2010 7:20 PM (GMT 0)
Hi All :)

Son decided to join me in being ill last week but now all back to normal :) Main downer at mo is dd had a Dr's appointment today(can't get hold of her at mo to hear how it went)She has been experiencing d and constipation, extreme bloating and gas(also been anaemic)-hmm I wonder what that sounds like!!!!!!! Please don't let it be her too. Hopefully they will run some blood tests and see where to go from there. Fingers crossed!
NCoT-you are bound to resent it but you musn't let it take over. Actually I will email you rather than carry on here !
Posted 11/16/2010 9:36 PM (GMT 0)
What are you beading, Jeanneac?

NCOT, yes, it's frustrating, but every time you start thinking that way, I think it might help you to remember what great strides you're taking in getting better care and treatment and quality of life for yourself. Writing to your gp is a HUGE step, and I think you should be really, really, proud of yourself.

As I said earlier, this may take time, but I think you can only benefit once you start advocating for yourself.

I'm glad you're starting to feel better, Vixen. And fingers crossed for your daughter.

Good luck at your infusion, mdf.
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