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Colonoscopy results, No Meds

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Crohn's Disease
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Posted 12/3/2010 4:34 AM (GMT 0)
Hello all! Yes, I'm actually back! Just thought I'd share the recent results of my colonoscopy.

As a quick refresher...I was diagnosed in Nov. of 09 and told to do steroids and 6MP by my GI. I said no, that I wanted some time to discover what role diet might play in this disease and go with Natural medicine. I did Jordan Rubin for the first 3 weeks, which cleaned my system out and started me with clean slate. Then I went on the SCD and have followed that as fanatically as I could since. My large intestine was very inflamed last year, with severe cobblestoning evident in the colonoscopy pictures. Each doctor who looked at the pictures simply said something like, "wow!" because it was so evident from the pics that there was bad stuff happening there. I have never taken a drug to treat this Crohn's, but have followed the SCD and the advice of my Naturopath, who himself has Crohn's.

So, I wanted some new pics of my gut to see how this "experiemental" year has gone. Short story....the pictures show no inflammation. Period. If you look at the pictures and compare from last year, it doesn't even look like the same gut. The pink is back (instead of the angry red), you can see what I guess are veins, and there is no cobblestoning present.

Hmmm....can I be so bold as to say that, FOR ME, SCD has brought on remission? My symptoms are 95% gone, my blood work comes back virtually normal now (SED, CRP, thyroid, Vit. D, etc....all have come under control this past year), and the colonoscopy shows no inflammation. I am NOT saying that everyone should follow what I did. BUT, I do believe that the SCD has some merit, and there may be a small percentage of us with Crohn's that can do this without meds.

newfoundsun
Crohn's 1 year
No meds
www.newfoundsun.wordpress.com

Post Edited (newfoundsun) : 12/2/2010 9:38:29 PM (GMT-7)

Posted 12/3/2010 5:17 AM (GMT 0)
Congratulations! It's a great feeling getting a good scope :-).
Posted 12/3/2010 6:00 AM (GMT 0)
wow...congrats!!!
Posted 12/3/2010 12:35 PM (GMT 0)
please I need your advice
i'm following the scd and taking pred and aza
it's about 3 weeks, I noticed some improvements, but also some worsening of my symptoms, I notice more blood in the stools and the stools are a bit more formed. I'm still having many trips to the bathroom per day.
when you began the diet, what did you eat?

did you eat any types of meat? honey? eggs? did you do the recipes (the cakes and so on)? did you use the nut flours? what about cheeses? i think I'm not tolerating the scd yoghurt as I feel the symptoms are worsening a bit when I eat it, so I'm avoiding the cow hard cheese and opting for the goat hard cheese but I'm not sure is still not harming me. I'm afraid that when the inflamation is too much I should avoid many scd.

which fruits did you eat? did you try citrus? I'm feeling I can only eat bananas.
Posted 12/3/2010 12:57 PM (GMT 0)
Do you mind emailing me your naturopath's info?
Thanks and CONGRATS!
Posted 12/3/2010 2:40 PM (GMT 0)
Hello asdrubale. I'll tell you what I did, but I would suggest finding the yahoo group that's specifically for the SCD. There are people there that have been on the diet much longer than I have, and can likely answer any questions that you have.

I made some mistakes in the beginning, but my symptoms were not severe, so I "got away" with them without too much aftershocks to my system. I continued to eat the chicken soup every day for those first couple of months. That was a staple for me. I slowly started to introduce one thing at a time. As an example, I might have served chicken to the family with a salad and fruit, and I would have just had a small portion of the chicken. I then would wait a few days and see what that did to my system. If I had no increase in symptoms, I figured I could handle it. I did the same when introducing any new meats, veggies, cheese, fruits, spices, etc. I have also kept a food journal religiously since diagnosis. With that, I am able to track my symptoms better and tie any that occur to a possible food, most times. Sometimes, it's just this disease rearing it's ugly head though, and I couldn't point to anything in particular.

Right now, I can eat chicken, beef, salmon, and white fish. I have tried cheddar, parmesan, and havartti cheeses with good results. I make my own homemade yogurt, which I will add frozen blueberries to for a quick snack, or add other frozen berries to for a smoothie. I eat a lot of eggs. I eat broccoli, cauliflower, squash, zucchini, carrots, celery, peppers, garlic, onions.....maybe a few other veggies but that's mostly it. I cook them well, but occassionally will take a bite of one raw and just that bite or two doesn't do anything to me. For fruit, I seem to handle a lot of raw fruits, but I am cautious. My fall-back fruit is baked apples or applesauce. I know I can't eat too much of grapes or watermelon, as that will set my gut off. I can't think of much else right now that I eat. It truly is an individual thing. I started by cutting EVERYTHING out of my diet except Brasco Broth, goat's milk yogurt, and Keifer milk. I did this for 3 weeks, and then found SCD and followed that advice.

Hope that helps. Go find the other site, please, and ask them. They are very good, and nice, there. Here's a link to the homepage for that site:

http://health.dir.groups.yahoo.com/group/BTVC-SCD/

newfoundsun
SCD and Crohn's 1 year
No meds
www.newfoundsun.wordpress.com
Posted 12/3/2010 3:15 PM (GMT 0)
THANKS; but if your colonscopy sees no inflamation are you still afraid you can't handle raw fiber? I thought that when one's in remission one's can get salads and raw fruit?
Posted 12/3/2010 8:29 PM (GMT 0)
I guess my thinking is...I still need to be careful. I don't want to undo what good has been done. I will still take it slow in introducing new foods, and eating raw things. Just because I'm in possibly in remission and we know that the inflammation is gone, does not mean I can now go out and eat anything I like. That would just lead to disaster, I think. :)

newfoundsun
www.newfoundsun.wordpress.com
Posted 12/3/2010 10:35 PM (GMT 0)
ok. I'm a bit sceptic about my colon condition, think it's too much depleted for being relieved from the diet; this is because I'm following the diet, but it seems I still bleeding and many trips. however I'm trying to going on. i'd like to know if someone stayed in the diet for months, noticing minor improvements, then staying better and better.
Posted 12/3/2010 11:10 PM (GMT 0)
That's the crux of this whole matter....each of us is different and can react different to everything. Yes, my gut was in bad shape, but no where near where a lot of other people start out at. I do think that diet, any diet, needs to be given a chance to succeed. How long have you been on SCD? Also, Elaine, I believe, said that SCD might not work for everyone. :(
Posted 12/4/2010 10:06 PM (GMT 0)
perhaps 1 month, but the fact is not about mid-term improvements, it's that I notice a bit of improvements, and then it seems it stands just there and then perhaps worsening. for example this last week I have some pain i never had.
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