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Crohn's Disease
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Posted 12/8/2010 1:59 AM (GMT 0)
I have been feeling great these past few days. I've had a few mild spasms but that's really my only complaint. No D, almost reg bm, occasionally it hurts as things come out, feels like sand paper/glass. But I've had more energy, I'm not as nauseous or throwing up, I don't hurt nearly as much (except my hands), I've been cooking and cleaning, playing with my daughter. Life is almost normal again!

My theory is... I'm off the imuran still (waiting on blood results from the test yesterday, I'm calling them tomorrow) I've overall felt better since getting off it. I am starting to think that the imuran was causing more harm than good for me.

Has anyone else experienced something similar?
Posted 12/8/2010 2:17 AM (GMT 0)
I believe that could be true in some cases. When I tried it I thought I got worse and my doctor said I was just in such a bad flare it was just the flare, but I disagree. I had been in a bad flare, put in the hospital for a week and was slowly getting better. When I got out of the hospital he started me on Imuran. I was so nauseous all the time, I had to keep peppermints with me at all times. My abdominal pain kept getting worse, not just cramping overall just pain. Then over the next few weeks even though I was still on 40 mg of prednisone I just continued to get worse and ended back in the hospital worse than the first time. I have always thought the Imuran contributed to making my flare worse.
Posted 12/8/2010 7:47 AM (GMT 0)
Yes, though not with the Imuran.

Unfortunately, however, sometimes we just have to deal with the side effects, because the effects of unmanaged Crohn's are even worse.
Posted 12/8/2010 9:18 AM (GMT 0)
I got so sick when I was on imuran I had to stay in the hospital for 10 days. Got burning fever and fluids in my heart and lungs. So too me its like giving me poison. We tryed it again a few months later. I stopped taking it as soon as I got fever again.
Posted 12/8/2010 2:29 PM (GMT 0)
I was on Imuran for years but stopped taking it last year to qualify for a clinical trial. I also felt better not taking it, mainly had more energy and a sort of fog was lifted that I hadn't even realized I had been living in for so long. Hard to explain it. I was able to think clearer and had more energy. Not sure it helped my crohns as I've been in a flare for last six months but I share you experience
Posted 12/8/2010 4:51 PM (GMT 0)
Glad to know there's others! I'm mentioning this theory to my dr and go from there. I kind of want to take it again and see if those things return, that way we know for sure it was the imuran.

Cupcake- I've had abdominal pain for a year, not cramping pain, but only way I can describe it to others is like doing a million crunches and your belly is constantly sore. That pain is more or less gone! It still hurts when you push on it, but it's not a constant ache anymore.

Dave- I know what you mean by fog. Things seem brighter now and I'm less depressed.

Ivy- I'm still on other meds, so we might have to try something other than imuran to double with pentasa.

Iser- I'm sorry it wasn't a great experience for you!
Posted 12/8/2010 5:17 PM (GMT 0)
I've recently stopped Imuran for the same reasons.  While I was taking it--I was nauseous, had constant diarrhea and incontinence issues, and a constant sore throat.  I felt like I had the flu every day and need to be in bed by 7:30 or 8:00 p.m.
Posted 12/8/2010 8:00 PM (GMT 0)
my boy was on imuran for two years. in that time, he was always sick, developed arthritis to the point that he couldn't walk some times, and never thrived. after going off imuran, he felt better almost immediately. No arthritis, more energy, and happier. Hamstringing your immune system can be a dangerous thing if you don't live in a bubble.
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