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Crohn's Disease
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Posted 12/25/2010 7:36 PM (GMT 0)

     I am in need of advice.  My hubbys had Crohn's Disease for 19 years now. I am SO stressed out as we have been refused disability twice. His "bathroom needs" are getting worse and he now has Crohn's in 2 places. He is being treated with Remicade every other month.

     I am also starting to have health issues with my back and may need surgery. I have had 4 hip surgeries and a shoulder surgery in the past. We are both emotionally tired.....not of each other, but just all the crap that goes along with us both having issues.

     Can anyone give me some helpful stress reducer advice.  My husband refuses to go on a vacation even for a weekend as he is worried about his bathroom breaks.

Posted 12/25/2010 9:21 PM (GMT 0)
It sounds like he needs more effective treatment! Definitely both of you go see his GI and talk about his issues and figure out how to get him better.

Stress reduction? How about a staycation - no work, but no travel either. Maybe take a hotel room for the wknd so you get out of the house and don't have to deal with chores, etc.
Posted 12/25/2010 11:59 PM (GMT 0)
Thanks Kazbern! I appreciate any advice. Even a motel room sounds good and there's one only 15 miles away and they have a pool. Thank you again!
Posted 12/26/2010 4:01 AM (GMT 0)
If you can afford it a massage from a really good massage therapist makes a huge difference for me.

It sounds trite but sometimes you just have to find something pretty to look at like a flower or clouds or a child and sit still and pay total attention to enjoying that moment.
Posted 12/26/2010 4:31 AM (GMT 0)
I do not know where you live but if you can find a goverment issued place that aids people to do all the paper work that is your best bet.  Try some Glycosamine for him and for yourself-it helps joints.  Crohn's is related to arthritis so it helps that also.  Remicade has helped me, I still have my problems though.  Also make sure you take time out for yourself.  I believe when it comes to this disease,  it is alot to do with mind over matter.  Positive thinking.
Posted 12/26/2010 4:35 PM (GMT 0)
Is your husband on probiotics? They can help alot with the diarrhea. I was in remission but having 6-8 diarrhea bouts a day, I started probiotics and I am now going only 1-2 times a day. They also have Questran you can ask your doc about to help ease the diarrhea. For anxiety, which many of us suffer with, I use the lowest dose of Xanax available and it really helps. I only use it about 1-5 times a month. Good luck!
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