I am using LDN as this is the only medicine I can tolerate. My GI tells me that no Crohns meds is suitable for me, because I have kidney cancer, he says that the typical Crohns treatments will suppress my immune system and the result could be quite fatal for me.
I would like to use a maintainance medicine that is not suppressing the immune system, so, if there is any Crohns meds that's ok in that case, please tell me.
I have Crohns in my small intestines, there are a few narrowed areas / or possible inflamed patches in the jejunum. I am still heading a surgery, but there is no disease activity these days, so I am waiting, have done that since my first LDN, 3 years ago. According to my GI there is no need to do the surgery as long as my Crohns is more passive than active.
I am so happy that my jejunoileitis haven't given me any fistulas yet. This is very typical and often the case when you have jejunoileitis (the part of the small intestines above the ileum). I suspect that LDN is stopping the developement of a fistula.
Anyway, I am managing this situation by having a proper diet, I am using a glutenfree diet and LDN. I really think that LDN is doing a lot for me, and I am so glad that this medication is boosting the immune system, because I really need that one
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