Ivy, I don't have any fistulas, but yes, not being able to push on my stomach and hear me yell out is one of the things that's steering me away from it. It seems like they must have decent results from the program, or you don't think a hospital who was ranked one of the best would continue the program, but who knows. That's why I'm trying to get opinions on it.
MMckenna, yeah, insurance won't cover the online second opinion, so I'm wondering if there will even be much of a price difference between online and going in person but being able to file with insurance. I think the 6 hr or so drive each way is part of what's deterring me from actually going. And if it was in FL or somewhere warm, I'd be all for a vacation there, but Cleveland!? I found that they do have two locations in FL, but they weren't ranked nearly as high as the one in Cleveland, especially for rheumatology, which is a big issue for me.
Thanks for the replies...and if anyone else has any experience with it or any insights, I'd appreciate those as well. I'm really on the fence about it and happy to be persuaded either way.