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Crohn's Disease
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Posted 2/21/2011 8:06 AM (GMT 0)
I was wondering if I am the only one who suffers from this... I can be exhausted all day then when I go to bed I am wide awake and can be for some time, lights out tv on reading doesnt matter.  I am also on things like elavil for headaches, and muscle relaxers as well to help with my headaches.  It varies night by night how well I sleep the past few nights I have even woken my boyfriend up bolting to the bathroom thinking my fart will end up a shard or feeling I need to have D but it is nothing but gas and I go back to bed.  Then when morning comes I am so utterly exhausted I cant get out of bed til at least 9 (sometimes later based on when I go to bed and when I actually fall asleep) i can even get to bed by 11 fall asleep by 12 ( on a good night) then who knows I may be in bed until 8 or 11 doesnt seem to matter when I fall asleep either.  I have had nights where I cannot fall asleep until 4am and I am up by 10 or 11 or I can be out by 1 and have the same result.

I was wondering if I am the only one.  I try not to take naps during the day no matter how tired I am (I have been so tired to the point where I fall asleep at the movie theater 3d glasses on and all) or just struggling to stay awake even while eating a meal then wham bed = wide awake...

Posted 2/21/2011 9:12 AM (GMT 0)
OMG!!! That is soooo me right now....its not even funny! Its 2am here right now and wide awake! I was soo tired all day and all I wanted to do was sleep! I figured that around 11ish I could crawl into bed and sleep but no....watched tv...read a book...figured I would come on here and read some posts then try to sleep again...My problem is meds though...I have been on Pred a week with a few more days to go and its hit me the last couple of days with missing ankles and lack of sleep and hunger...and I do mean hunger..I am supposed to be on a liquid diet and transitioning to soft foods now. hahahaha yea right! All I can think about is food and eating...and my poor missing ankles(if you've seen them can you send them my way?) Sleep...sigh...I would love to sleep..I even tried a hot shower as that usually makes me drowsy..but no...sigh..
Posted 2/21/2011 1:02 PM (GMT 0)
How long have you been taking the Elavil? I was put on it for headaches a few years back, I was on it for something else a few years before that (chronic pain?). I had forgotten in between each time how much I HATE it. I can not sleep on it. I was suppose to take it right before bed then it would wire me. I would also have really weird dreams on the odd nights that I was actually able to sleep. I will never take it again. Just a thought.
Posted 2/21/2011 1:06 PM (GMT 0)

I respond to any post that has sleep issues, pain, or side effects. I've had cd 40 years. sleeping issues since 1985, when I was put on serax,  (benzoidiazapam). I started using that drug for sleep, evan tho it is anxiety drug, then I take temazapam (restoril) for sleep, my problem when I get in bed, I worry,worry,worry. can not shut my brain off. I'm on ssdi (cd) but we have family art business, so I worry about my fatigue on doing my art, and I worry about sales. My problem, I can't fall asleep without pills. Fine, I can deal with that. I've learned when you are flareing, when we sleep out body is trying to heal itself, so it is really important that you sleep, so your body can rest and try to heal itself. I take pain med's as well as remicade. just to get thru day with some form of quality of life, On top of cd discomfort, I have muscle and joint pain, I feel is from rem. just to let you ladies know I'm right along with you in sleep thing. This disease makes you have anxiety, and having it is stressful,knowing what the future will hold is frightening to me, I'm 60 and still have mortgage, scarry stuff, make anybody stay up at night. I pray people will spend this year. I need rich people to get there hands out of there pockets and spend.

AG

Posted 2/21/2011 4:32 PM (GMT 0)
I have been on and off elavil for over 7 years now and normally it knocks me out
Posted 2/21/2011 4:49 PM (GMT 0)
At the moment I am managing about 3 hours sleep a night sie to a combination of pred and also the amount of output from the ileo bag. It has been like this since beg November. Suffice to say been off work since end of November as concentration not great and as I advise people on technical stuff probably not good idea at moment as lose train of thought easily.

Am hoping that the Humira I started week before last, bext injections Wednesday this week, will start to reduce amount of output so can get some decent sleep!
Posted 2/21/2011 6:57 PM (GMT 0)
I am right there with you all. I am exhausted all the time!!! But sleep at night? Not a chance of decent sleep at all. The odd night I actually do sleep well, I am still so tired that I might as well of had 2 or 3 hours sleep.

Must be just one of those whacky side effects of the Crohn's.....lucky us!

Tanya
Posted 2/21/2011 9:44 PM (GMT 0)
I slept poorly and resisted taking drugs my whole life. After taking pred and pentassa and... I figured what harm could a couple more cause.
Now I take a relaxer (I call it my 8 PM cocktail - amatrypolene (sp)) and I take a sleeping pill on the weekends. I take the Ambian knock off.
They do not work all the time but mostly I sleep ok and once a month I get a full and great sleep.
Taking the sleeping pills was a great decsion for me and one I do not regret.
Dave
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