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For those who have Celiac disease with Crohn's

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Posted 3/5/2011 4:28 AM (GMT 0)
How do you get tested for Celiac? I notice when I eat things like my dinner tonight (angel hair spaghetti with meat sauce) I find I have abdominal discomfort.  I do not notice this though with things like a sandwich, which leads me to believe it cant be celiac I had no dairy what so ever at all today either

thoughts?

Posted 3/5/2011 4:47 AM (GMT 0)
There is a blood test for Celiac disease. You can ask your doctor to run it, it's very simple.

However, a lot of Chronies have non-Celiac gluten intolerance, so you might want to cut out gluten from your diet for awhile and see if it makes you feel any better.
Posted 3/5/2011 5:13 AM (GMT 0)
I recently read that the blood test can have false negatives. I think the definitive diagnosis is to have biopsies done during an endoscope.

Here's an article that talks about how crohn's and celiac are related. My dad and I have crohn's, and his half-sister and one of her granddaughters have celiac. I feel infinitely better being gluten free!

http://www.celiac.com/articles/22440/1/Study-Shows-Celiac-Crohns-Disease-Share-Genetic-Links/Page1.html
Posted 3/5/2011 5:21 AM (GMT 0)
Getting tested for celiac is a good idea. I was recently tested. First by a blood test (which is not enough to diagnose), then an endoscope and biopsies of my duodenum. I was negative but possibly pre-celiac.

Other possibilities is that maybe the meat was too fatty. It's very common for crohnies to have trouble digesting animal fat. Or perhaps the tom. sauce (if that's what you had) was too acidic. I have often had this sort of trouble myself.

Another thing to consider is that grains, sugars, etc, feed bacteria and microorganisms, which could also upset the tummy of a person with CD. There are so many factors and possible contributors to our poor tummies.

Still, getting tested for celiac is something to talk about with your GI. You can at least rule it out, if nothing else. ;-)

Best wishes!
Posted 3/5/2011 3:25 PM (GMT 0)
maybe it is an intolerance to something else in the meat sauce ?  Onions (even small amounts in sauces) play me up something rotten ;)
Posted 3/5/2011 3:33 PM (GMT 0)
I think I agree more with Kiwi12. Stephanie you and I both have had multiple resections and that alone has changed what I can and can't eat and I think its the same for you. If I remember correctly you have had even more bowel removed than I have, so I think that might explain why food is irritating you more now. Plus if not mistaken you have been in a small flare also. You have posted in the past things you are eating, and I can tell you I couldn't tolerate those things myself. Hugs and good luck!
Posted 3/5/2011 8:04 PM (GMT 0)
It does sound plausable that it couls be the sauce I normally make my own from the canned variety that has no bits of anythign in it and I add my own spices and sometimes add a little canned tuna (sounds gross to many but I enjoy it) I was picking onions out of it that definitly could have been it if there were some mixed in. I see my GP on the 18th I may ask him about that but I lean towards it not being that since I can have bread etc with no issues. My CRP was 1.2 on the 16th of Feb, definitly could have been part even though I have gained 4 pounds since Dec. My GI when he did my scope in Sept optned not to do a Biopsy..he said we know you have had CD for 24 years there is mild to moderate active flare still with my meds (why he placed me on entocort) For years I thought it was meat that was bothering my belly when I made lasagna too but I am leaning more towards the lactose intolerance now. I always made it extra cheesy.. I am craving some so badly but I think I would need about 5 lactaid to eat some.


Yes nanners I have noticed I cannot tolerate some of the foods I use to be able to tolerate since my surgeries. Baked beans for one I love them and when I wasnt flaring before I could tolerate them not any more though.

thanks for the tips though I wondered how they tested for celiac
Posted 3/6/2011 12:49 PM (GMT 0)
The most interesting thing is that we don't have to react to something the day we eat it, your reaction could be from something you had the day before, Dragonfly. Or the day before that. It may very well be a reaction on what we're eating all the time that is showing it's ugliest face that day you're in pain.

Who am I to guess?
The only way to figure out WHAT brought the reaction out in the daylight is to do as is suggested here:

Try to stay away from possible triggers for a month.
Cut ALL gluten for a month......are you better? Cut it for another month. Are you much better then? Well, you might have digged and found a treasure.
If you're not better:
Try to cut all diary. Follow the same route.
And
If it's spices? Sugar? There you go! :-) Good luck! It's easier than we're first thought.

PS
Very often it seems to be the gluten or all gluten and starches and the diary. :-)
Posted 3/6/2011 3:50 PM (GMT 0)
Steph if you normally make your own sauce, I think the pre made may definetly been the culprit. I know I can eat some homemade stuff, but if its a canned variety I won't do so good with it. Hugs! You and I seem to have alot of similar issues because of our resections. That is definetly one big change I have noticed from my resections. I am doing fairly well right now and eating things I havent in a long while. But there are certain things I still have to 100% stay away from i.e. broccoli, bacon, milk, and corn to name a few.
Posted 3/7/2011 3:58 PM (GMT 0)
I am fairly new to the site.  For me, it seems there are a few things that bother me (i.e. coffee, alcohol, rich foods cooked in butter that you would get at a good restaurant) but what really bothers me is eating too much. 

Since i've been diagnosed with a stricture, I ate low residue foods and mostly soft foods, although I've have cheated plenty.

Initially, I ate a liquid/very soft, low residue diet and gradually seem to be better.

   But overeating is definatley not good now and before the stricture. 

Anthius

Crohns disease since 2008.  pentasa - 3 grams per day; entocort; rectal stricture;

Posted 3/7/2011 4:02 PM (GMT 0)
Yeah Anthius I am home sick today because I ate too much yesterday. Not all at one time, or things I have problems with, just ate more than I normally do in a day. Woke up at midnight with a stomach ache and the poops and things went downhill from there. I will be fine once all this stuff gets out of me. Hugs~
Posted 3/7/2011 4:15 PM (GMT 0)
Dear Nanners:

I hope you feel better. I hope I remember how most of the time it isn't worth it to eat too much. I am an overweight chronnie... by about 20 lbs.

Take care.

Anthius

crohn's disease since 2008; pentasa and entrocort.
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