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It was good while it lasted

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Crohn's Disease
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Posted 3/8/2011 3:28 AM (GMT 0)
I'm flaring again :( We are starting the process to get me on one of the biologics, most likely Remicade. My 2 month remission was good while it lasted. *sigh*
Posted 3/8/2011 3:36 AM (GMT 0)
Good attitude. I hope you start to feel better soon.
Posted 3/8/2011 12:15 PM (GMT 0)
sgirl, can you tell me your experience with Apriso.  I'm on Lialda but my GI wants me to try Apriso.  I only go once or twice a day but it is never normal--usually small pieces with gas.  Is this considered remission?
Posted 3/8/2011 2:49 PM (GMT 0)

nancy, not normal, something is cooking up.

sgirl, I felt horrible about having to start rem. now it's OK, emphasis on just OK. i do have side effects, not a party. I have to say which is worse, bad crampy(we no how that is) or muscle pain. either way I have to use pain med's. I tried to get around it, but no way. Thats life with cd. I find this quite amazing, so many decent people on this site, don't ever hear of murders or creepy people with gi issues, seems like it effects decent hard working loving people. What is with that?

AG

Posted 3/17/2011 11:54 PM (GMT 0)
Hey Sgirl,
I have been there too. I was diagnosed at 18 right before college (ugh). I ahve been on tons of meds throughout this ordeal. There was a time when I couldn't really do anything but sleep and use the bathroom for almost a year. I was totally hopeless. I got a new doctor that was super positive and he got me on a double dose of Remicade every 8 weeks. I then went on aziothioprene a small dose and have been off of that for about a year. I now am not on anything which I really didn't think would ever be possible. Keep positive and you will have many times where you forget you have a disease. Good luck and we feel for you.
~ Tina
Posted 3/18/2011 1:59 PM (GMT 0)
Sorry your remission is over. Hope the doc finds the right meds and you start feeling better soon. Hugs!
Posted 3/18/2011 2:48 PM (GMT 0)
Sorry you're coming out of remission. Maybe remicade will be a wonder drug for you. It was for me. Took me through 6 years and kept me pretty much in remission. Hopefully having to go on remicade will turn out to be a good thing. (((HUGS)))
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